ALS Clinic Community and Research Day 2023
Please join us for this year's ALS Clinic Community and Research Day on Saturday, May 6th, 2023 1:00 - 4:00 PM EST. Charlestown Navy Yard 114 16th Street, Building 114, Room D1…
Cruisin to a Cure
(Lawrenceburg, Ind.) – The early registration period for the 7th annual Cruisin to a Cure for ALS is nearing its end. Those planning to enter the car show have until…
The Fight ALS Film Fest: Augie, with a discussion moderated by Lynne Nieto
VirtualThe Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
Metascience 2023 Conference
Event Details Metascience 2023 will be an in-person conference on May 9-10, 2023 from 8:30am-5:30pm ET. The registration fee is $85 for students, $150 for non-students. A streaming option will…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
The #ALSinDC Flag Event
Dates: May 11th-13th, 2023 (set-up is May 10th) Location: Washington, DC We’re getting excited about our ALS Awareness Month event this year, and we hope you are, too! Similar to…
Evidence-Based Consensus Guidelines for Genetic Counseling and Testing in ALS
About the Program: The practice of genetic testing in ALS has been impacted by high patient demand for testing, sponsored testing programs, and a new drug application to the FDA for…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
The Fight ALS Film Fest: It’s Not Yet Dark, with a discussion moderated by Ruth Fitzmaurice
VirtualThe Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
ALS Drug Development Summit (2nd Annual)
Revolutionizing ALS Models, Novel Biomarkers & Clinical Endpoints to Accelerate Future ALS Approvals Following the approval of Amylyx’s Relyvrio and the upcoming Biogen/Ionis Tofersen FDA decision on the basis of…
Accelerating Health Equity Conference
A time to connect and collaborate to advance community health, well-being, and equity. Long-standing health care disparities and inequities still persist. Systemic drivers such as structural racism and economic disadvantages…
Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- Meeting #2
Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease that attacks motor neurons and leads to their gradual degeneration and death, often within two years of onset.…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
CCALS Stroll & Roll
CCALS Stroll & Roll Saturday, May 20 Join us for this scenic two-mile walk along the Cape Cod canal. Stroll & Roll is family-friendly, dog-friendly, and wheelchair accessible. Sign up to enjoy food trucks, inflatables, face painting, craft…
19th Annual Research Update and Awards Luncheon
You are invited to the Research Update and Awards Luncheon. Join us as we hear from our guest lecturer, Dr. Matthew Harms, learn about the work of the ALS Hope Foundation,…
Calling All First Responders: Come Learn About ALS
When an emergency strikes, we want you, our first responders, on the scene. But when that emergency involves someone living with ALS, things can be more complicated. The best way…
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
The Fight ALS Film Fest: From the Passenger Seat, with a discussion led by Gabe Rovick and Cindy Wyman
VirtualThe Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
From the Passenger Seat is an educational adventure film that explores one man's exceptional life, a heroic two-year battle with ALS, and an epic farewell road trip. Through a creative lens, F4D Studio shows what life can be when it is lived with purpose, immobile vigor, and an unquenchable thirst for experiences. This film can be watched at https://fromthepassengerseatfilm.com/
What’s in a gene? And introduction to Familial ALS
An ALS diagnosis often comes out of nowhere. Most people do not even know what ALS is until they are diagnosed with it. Unfortunately, there are families where ALS is…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Maintaining My Independence
VirtualA panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips, considerations, and what can be done at home.