What’s in a gene? And introduction to Familial ALS

An ALS diagnosis often comes out of nowhere. Most people do not even know what ALS is until they are diagnosed with it. 

Unfortunately, there are families where ALS is very well understood and an ALS diagnosis is common. People with familial ALS often have several known relatives who have lived and, in most cases, died from ALS.

Familial ALS is an inherited form of ALS, where one gene is the cause of ALS. However, not all familial ALS forms are the same. 

Please join us on May 25 @ 6 pm ET in conversation where people living with and impacted by familial ALS will talk about their experiences and provide information on familial ALS. 

The conversation will take place for 75 minutes, with time for a question and answer period.

This is the first installment in a three part series. Check out the other events:

• Big Feelings in Familial ALS: A Community Conversation about Generational Trauma