|Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease that attacks motor neurons and leads to their gradual degeneration and death, often within two years of onset. Currently, no treatments exist to stop or reverse the disease. This is the second meeting of a study committee mandated by Congress and sponsored by the National Institutes of Health to identify and recommend key actions federal agencies, the pharmaceutical industry, and nongovernmental organizations should undertake to make ALS a livable disease within a decade. During this meeting on May 18, 2023, from 9:30 a.m. to 12 p.m. ET, the committee will hear from leaders of ALS nonprofit organizations about the tools they need to improve the impact and effectiveness of the ALS nonprofit sector.
The event will be held in-person and accessible via live webcast. Find more information on the event page.