Weekly HEALEY ALS Platform Trial Webinar

Virtual

Thursday, December 1st, 5:00 pm EST: Weekly Q&A with guest speaker Catherine Douthwright PhD, CCRP from UMass Worcester-  Click here to register  Catherine Douthwright PhD, CCRP Catherine brings years of previous…

Free

33rd International Symposium on ALS/MND

Virtual

The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic…

£60

Sanofi Himalya trial in ALS

Virtual

About the Event Dr. Merit Cudkowicz is the Director of the Sean M. Healey & AMG Center for ALS, Chief of Neurology at Mass General, Director and the Julieanne Dorn…

Free

Postponed ALS & Exercise

Virtual

About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression.…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, December 8th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, and Merit Cudkowicz,…

Free

Twitter 101 Presentation

Virtual

Are you looking to share your story with a broader audience or increase the scope of your advocacy? If so, using social media platforms like Twitter may help. If you…

Free

Holiday Tricks and Tips

Virtual

McFinn Lovere ALS ADVOCATE We are excited to host EverythingALS Community Event:  Share your Tips and Tricks for Living with ALS  We invite you to EverythingALS Community “Tips and Tricks”…

Free

International Symposium on ALS/MND Debrief

Virtual

The International Symposium on ALS/MND occurred December 6th through 9th, and some community members attended and presented at the conference. They returned with new knowledge, perspectives, and experiences that they would like…

Free

January Social Hour

Virtual

Happy 2023! Time to make some new friends and catch up with old ones in the first social hour of the new year. For those who may not know, social…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Special Topic: Regimen C Updates Please join us on Thursday, January 12 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni,…

Free
Event Series ALS Office Hours

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

50 in 1 Bar Crawl for ALS

The 50 in 1 Bar Crawl is back! Saturday, February 4th 2023 After the past couple of years we could all use a drink…or a few. We will attempt to…

Pat’s Maps

Virtual

You’ve heard of advocating for ALS, you’ve heard of organizing for ALS, but have you ever heard of…mapping it? That’s right, I said mapping! He has created many maps for…

Free
Event Series ALS Office Hours

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…