Calendar of Events
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1 event,
Weekly HEALEY ALS Platform Trial Webinar
Weekly HEALEY ALS Platform Trial Webinar
Thursday, December 1st, 5:00 pm EST: Weekly Q&A with guest speaker Catherine Douthwright PhD, CCRP from UMass Worcester- Click here to register Catherine Douthwright PhD, CCRP Catherine brings years of previous research coordinator experience to her current role working on the Platform Trial at the University of Massachusetts Chan Medical School in Worcester, MA, where she also serves…
2 events,
33rd International Symposium on ALS/MND
The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease. This year's event takes place between 6 - 9 December 2022. More details on the event will be online soon.
Ask Me Anything ALS – Finding Meaning as a Caregiver
Ask Me Anything ALS – Finding Meaning as a Caregiver
ALS brings with it a lot of uncertainty and loss emotionally and physically – for the person living with ALS and their caregivers and loved ones. As a caregiver, you’ll experience many different emotions along this journey, and with so much to learn plus the shock of diagnosis, it can feel like you’re lost in a foreign…
4 events,
Postponed ALS & Exercise
Postponed ALS & Exercise
About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at Shirley Ryan AbilityLab, will discuss the benefits of exercise among people living with ALS along with…
Weekly HEALEY ALS Platform Trial Webinar
Weekly HEALEY ALS Platform Trial Webinar
Please join us on Thursday, December 8th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, we will be joined by Mia Resendes, Primary Coordinator…
1 event,
Twitter 101 Presentation
Twitter 101 Presentation
Are you looking to share your story with a broader audience or increase the scope of your advocacy? If so, using social media platforms like Twitter may help. If you feel daunted or overwhelmed by using social media, you’re not alone! That is why community members Mandi Bailey (aka the Self-Taught Social Media Mama) and…
2 events,
ALS Association Greater Sacramento Chapter Support Group Meetings
ALS Association Greater Sacramento Chapter Support Group Meetings
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
1 event,
International Symposium on ALS/MND Debrief
International Symposium on ALS/MND Debrief
The International Symposium on ALS/MND occurred December 6th through 9th, and some community members attended and presented at the conference. They returned with new knowledge, perspectives, and experiences that they would like to share with the broader community! That is why we are hosting a community conversation that will allow presenters/attendees to compare notes and share what…