Boosting Resiliency with Nicotinamide Riboside

Virtual

Charles Brenner PhD at Stanford University, Alfred E Mann Family Foundation Chair in Diabetes and Cancer Metabolism, Charles Brenner is the Alfred E Mann Family Foundation Chair in Diabetes and Cancer Metabolism in the Department of Diabetes & Cancer Metabolism. His laboratory focuses on disturbances in nicotinamide adenine dinucleotide (NAD), the central catalyst of metabolism,…

Free

An Overview of Voice and Message Banking for People Living with ALS

Virtual

About the Program: Have you ever thought about Voice or Message Banking, but don’t know where to start? Voice and message banking for people living with ALS can be an emotional, overwhelming, and seemingly complicated task to navigate. However, it doesn’t have to be. Anne Marie will discuss the differences between voice banking, message banking,…

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…

Free

Canceled Weekly HEALEY ALS Platform Trial Webinar

Virtual

Featured Site: Vanderbilt University Medical Center Please join us on Thursday, August 18th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature…

ICER Midwest CEPAC Public Meeting on AMX0035 and Oral Edaravone for Amyotrophic Lateral Sclerosis

Virtual

AMX0035 (Amylyx Pharmaceuticals, Inc.) oral edaravone (Mitsubishi Tanabe Pharma Development America, Inc.) Given current data, AMX0035 is comparable or better to standard of care; AMX0035 would achieve common thresholds for cost-effectiveness if priced between $9,100 – $30,600 per year. Evidence indicates oral edaravone is comparable or incrementally better to standard of care; treatment would achieve…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

ALS TDI Community Conversations

Virtual

Join the Conversation on August 23 Overview of research at ALS TDI and current clinical trials. Tuesday, August 23, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion…

Free

ALS Association Greater Sacramento Chapter Transitions Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…

Free

Stakeholder Call: ACT for ALS Update

Virtual

On June 23, 2022, the FDA unveiled its Action Plan for Rare Neurodegenerative Diseases including Amyotrophic Lateral Sclerosis (ALS) – a five-year strategy for improving and extending the lives of people living with rare neurodegenerative diseases by advancing the development of safe and effective medical products and facilitating patient access to novel treatments. We'd like to cordially…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, August 25th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to Site Investigator…

Free

ALS TDI Walk for Research

Zervas Elementary School 30 Beethoven Ave, Waban, MA, United States

Join us on Sunday, August 28, 2022, for the Walk for Research! Enjoy a four-mile walk through Newton, MA. The walk proceeds benefit the ALS Therapy Development Institute (ALS TDI) and their mission to End ALS. Sunday, August 28, 2022 | 10am  Zervas Elementary School 30 Beethoven Ave, Waban, MA 02468

Virtually bringing comfort & safety to your home

Virtual

About the Event Homes are where we all live, work, play, and thrive. At Prev.ai, we believe that homes should grow with us, and just as our lives change, so should our homes. We are a 100% virtual fall prevention program harnessing computer vision and AI, linked to a network of trained clinicians, to provide…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 1st at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. James Berry, MD, MPH will present this week’s updates on the HEALEY ALS Platform Trial, discuss biomarkers, and answer questions from the audience. James Berry, MD, MPH Dr. Berry is the Director of…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…

Free

ALSExpert Talk Series: Nicholas John Maragakis, M.D.

Virtual

Using induced pluripotent stem cells as a platform for understanding ALS disease mechanisms and therapeutic development Dr. Maragakis is the Medical Director of the Johns Hopkins ALS Clinical Trials Unit and Director of the ALS Center for Cell Therapy and Regeneration Research and Professor of Neurology at Johns Hopkins University. The Center for ALS Specialty…

Free

Home Automation for People Living with ALS

Virtual

About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off in your home, have become much easier.  Team Gleason’s mission is to have people living with ALS remain as independent as possible no matter where…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

Mes de la Herencia Hispana Language and Access Community Conversación / Hispanic Heritage Month Language and Access Community Conversation

Virtual

Registrarse/Register Mes de la Herencia Hispana Conversacion con la Comunidad Temas de Idioma y Acceso Recibiendo un diagnostico de ELA, encontrar recursos e informacion y conectarse con las organizaciones adecuadas ya es dificil. Para los hispanohablantes afectados por ELA, la adicion de una barrera del idioma complica todo el proceso y puede convertirse en un…

Free

Innovation in Clinical Trial Design

Virtual

Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community. Moderators: Gethin Thomas - Executive Director, Research | Motor Neurone Disease Australia Claire Magnussen, PhD - Program Manager, CAPTURE ALS, McGill…

Free

ALS Unfiltered

Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community Engagement and Outreach at the ALS Therapy Development Institute ALS Unfiltered is a series of live presentations and candid conversations about the science of ALS, drug…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Mariah…

Free