Presenters: Dr. Jinsy Andrews (Columbia University), Dr. Christina Fournier (Emory University), Dr. Eric Macklin (Mass General Hospital) What do researchers and scientists mean when they describe a study as “statistically…
Rare Disease Legislative Advocates (RDLA) invites members of the rare disease community between 10 and 18 years old to participate in our first Virtual Youth & Teen Advocacy Day. Advocates…
Please join us on Thursday, June 22nd at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…
Artist Robert Genn once said, “Art is a form of love. Art is the ultimate gift. Art heals life.” Art is also a force that is alive and well in…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
The Tri-State Trek is a weekend bike ride to benefit ALS research at the ALS Therapy Development Institute (ALS TDI). All proceeds will help find treatments for ALS, also known…
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Weekly Q&A with guest speaker Hilda Gutierrez, MD of Beth Israel Deaconess Medical Center
We're living 'Right Here, Right Now' Let's gather to laugh and raise funds for ALS Heroes. Jules has always loved stand-up comedy and as his world shifts with ALS, comedy…
You can register or donate to our online link. We typically get 400-450 participants! Walnut 5K Run/Walk for ALS Saturday, July 1, 2023 8:00 a.m. 323 S, Main St., Walnut,…
Weekly Q&A with guest speaker Bill Cho, MD, PhD of Calico Life Sciences (Regimen F)
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
The ENCALS meeting 2023 will be hosted in Barcelona, Spain from Wednesday 12 to Friday 14 of July 2023. On Tuesday 11 July there will be satellite meetings of all…
Weekly Q&A with guest speaker Sarah Heintzman APRN-CNP from Ohio State Universit
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
A Manual of Instructions: Maps for a Few Dark Places featuring Dr. Scott Eberle with an introduction by CCALS Founder, Ron Hoffman Sunday, July 16, 2023 1:00 - 2:00 p.m. ET …
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be…
Join us for our July ALS Learning Series with Dr. Senda Ajroud-Driss, neurologist and director of the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine.…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…
Regimen G Drug Science Q&A Webinar with Denali Therapeutics
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
NINDS Fundamental Neuroscience Working Group Public Webinar July 27, 2023 | 12:00 - 1:00 PM ET Please click this link to register for the webinar What is the Fundamental Neuroscience…
Please join us on Thursday, July 27th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc will present updates…
Join me, Kristine Copley, our founder, Ron Hoffman, and tech genius Tom Meadows in a groundbreaking presentation about hidden and undocumented functionality in the Apple OS that can specifically benefit…
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…
