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Virtual Youth & Teen Advocacy Day
June 22, 2023 @ 9:00 am - 5:00 pm EDT
Rare Disease Legislative Advocates (RDLA) invites members of the rare disease community between 10 and 18 years old to participate in our first Virtual Youth & Teen Advocacy Day. Advocates will have the opportunity to virtually meet with their Members of Congress and share their rare disease story. Prior to meetings with Members of Congress, advocates will attend virtual trainings on how Congress creates laws, how to communicate with your Representatives and Senators, and how to understand key policies affecting the rare disease community, designed for youth and teens.
Anyone between the ages of 10 and 18 with a connection to the rare disease community is welcome to participate, as well as their parents or guardians. We are offering two tracks. The first track is for advocates between 10 and 13 years old and the second track is for advocates between 14 and 18 years old.
When?
Virtual meetings with Members of Congress will take place on Thursday, June 22, 2023 between 9 am and 5 pm ET.
Dates for the required training workshops are:
- Sunday, June 4th, 4:00 pm ET: Virtual Meet and Greet
- Thursday, June 8th, 5:00 pm ET: General Training Webinar
- Thursday, June 15th, 5:00 pm ET: Share Your Story with Policymakers Webinar
- Friday, June 23rd, 3:00 pm ET: Virtual Celebration Meet-Up
Recordings will be made available to advocates who cannot attend webinars in live time.
