Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Yes, your stories are compelling. So are your ideas. We are more than our stories. Please join us in person or virtually on February 14 and 15, 2023, for a day of idea-sharing followed…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
This is an extraordinary moment in ALS care, research and discovery. Through the efforts of a fiercely determined group of ALS advocates, two new drugs were approved by the FDA…
One of the most common comments we hear is how hard it is to maintain friendships once someone is diagnosed with ALS. Join us to hear examples of friends who are making the best of a bad situation, examples of how to support a friend with ALS, and how people with ALS can continue to support their support squad!
An informal conversation with the 2022 Award winners on their careers and their contributions to the field of ALS/MND. Panelists include Sally Light (Humanitarian Award recipient), Dr. Richard Bedlack (Forbes…
National ALS Registry: Learn How You Can Join the Fight Against ALS.
About the Program A person living with ALS may not feel comfortable addressing relationship, intimacy and sexual health changes that occur during their ALS journey with their healthcare providers. Although…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open for this virtual event. Dr. Robert M. Califf, Commissioner of Food and Drugs, will…
February is filled with holidays: Groundhog Day, Valentine’s Day, President’s Day… It also features our monthly social hour, which isn’t technically a holiday, but we still think it’s pretty darn special! For…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
While there are currently no cures for ALS, there are numerous clinical trials taking place right now across the country with a goal of finding safe and effective therapies. With…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Today the topline results were announced from the pridopidine regimen of the HEALEY ALS Platform Trial. The HEALEY ALS Platform Trial is designed to accelerate the development of breakthrough treatments…
ALS clinical trials must represent all people living with ALS including those from diverse genetic, racial/ethnic, socioeconomic, and geographical backgrounds.
In March 2022, I AM ALS hosted the inaugural I AM ALS Action Summit to engage stakeholders in the ALS community to improve the clinical trial experience for people living with ALS and their caregivers. Summit participants included people living with ALS, loved ones and caregivers, physicians, clinical research coordinators, advocacy organizations, biopharma allies, and key government stakeholders.
This webinar, which will take place on March 8th at 6pm ET, aims to inform the ALS community of the results from the Action Summit and will include an exchange of ideas around clinical trial recruitment and retention and ways in which you can get involved.
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Please join us for a FREE educational update for patients, family members, caregivers, and medical professionals. We are thrilled to be able to bring together our world-renowned partner physicians
and researchers from Mass General Hospital, Brigham & Women's Hospital, and Cedars-Sinai Hospital to share their latest research into cures and treatments for neurological diseases. Each session includes a 30-minute presentation and one hour Q&A. This in-person event is FREE and OPEN to all and will also be live-streamed for a wider geographical reach. Bring your questions, and join us for one, two or three sessions! Breakfast and lunch will be provided.