January Social Hour

Virtual

Happy 2023! Time to make some new friends and catch up with old ones in the first social hour of the new year. For those who may not know, social…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Special Topic: Regimen C Updates Please join us on Thursday, January 12 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni,…

Free

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

50 in 1 Bar Crawl for ALS

The 50 in 1 Bar Crawl is back! Saturday, February 4th 2023 After the past couple of years we could all use a drink…or a few. We will attempt to…

Pat’s Maps

Virtual

You’ve heard of advocating for ALS, you’ve heard of organizing for ALS, but have you ever heard of…mapping it? That’s right, I said mapping! He has created many maps for…

Free

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

What Do I Need to Know About Clinical Trials?

Virtual

Learn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael…

Free

Instagram 101

Virtual

They say a picture is worth a thousand words, which means pictures are pretty powerful. Would you like to harness the power of photos and videos to help enhance your…

Free

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

Ask Me Anything ALS – Feeding Tubes/Nutrition

Virtual

As ALS progresses, eating and drinking can become difficult, which can often lead to discussions about feeding tubes. The decision to get a feeding tube is a personal one. There…

Free

I AM ALS Town Hall on Synapticure

Virtual

Gather around, good people!  I AM ALS is hosting a Town Hall on Thursday, February 2nd at 5 pm, ET!  Brian, Sandra, and I AM ALS’s board will give a…

Free

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…