I AM ALS Social Hour
Virtual***If you’ve signed up already in 2023, there’s no need to do it again. You will be added to the calendar invite.*** May has arrived, and it brings with it…
MDA’s Wings Over Wall Street
PLEASE JOIN US ON JUNE 1, 2023 AT 6:00 PM AT THE EDISON BALLROOM IN NYC FOR WINGS OVER WALL STREET'S GALA TO RAISE FUNDS FOR ALS RESEARCH DONATE or SPONSOR Wings TODAY!…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
5th Annual Run for Hope 5K
5th Annual Run for Hope 5KSave the Date for our Run for Hope! Sunday, June 4, 2023 7AM Registration and 8AM ET Run StartNorristown Farm Park 2500 Upper Farm Road, Norristown, PA…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, June 8th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Big Freeze 9
Big Freeze is returning for 2023! We’re so excited to bring back Big Freeze for it’s ninth consecutive year, raising vital funds for MND and to help eradicate the Beast!…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
ALS TDI Community Conversations
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Caregivers-Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…
Big Feelings in Familial ALS: A Community Conversation about Generational Trauma
When someone is diagnosed with ALS, it can devastate a family. Imagine multiple family members being diagnosed within your lifetime. And knowing that other living family members and future generations…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Caregiver Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Concierto De Esperanza
Concierto De Esperanza Join us for a musical evening celebrating Latin American music and raising awareness about ALS and Neurodegenerative Diseases in the Latino community. Saturday, June 17, 2023…
A Pulmonologist Explains Tracheostomy and Invasive Ventilation for People Living with ALS
Date/Time: Monday, June 19, 2023, at 12:00 p.m. CST Registration Link: https://attendee.gotowebinar.com/register/4658833508087010396 About the Program: Not everyone with ALS will need or choose to have a tracheostomy, but there may come…
Chicagoland Support Group
VirtualMeets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be…
Scientific Advisory Council Update & Q&A
VirtualA mid-year update from the Scientific Advisory Council.
Understanding Statistical and Clinical Significance
Presenters: Dr. Jinsy Andrews (Columbia University), Dr. Christina Fournier (Emory University), Dr. Eric Macklin (Mass General Hospital) What do researchers and scientists mean when they describe a study as “statistically…
Virtual Youth & Teen Advocacy Day
Rare Disease Legislative Advocates (RDLA) invites members of the rare disease community between 10 and 18 years old to participate in our first Virtual Youth & Teen Advocacy Day. Advocates…