NeuroSense Therapeutics Reports Positive Results from Stage III ALS Biomarker Study

Virtual

About the Event Prior to the establishment of NeuroSense, Alon founded MediCan Consulting, a successful consultancy firm which worked and collaborated with many leading pharmaceutical R&D companies, including Mediwound, Chiasma, Teva, Sol-Gel, FutuRx, NeuroDerm and others. The firm’s diligent employees were pioneers, who paved the way to more efficient and accurate work in the industry,…

Free

Boosting Resiliency with Nicotinamide Riboside

Virtual

Charles Brenner PhD at Stanford University, Alfred E Mann Family Foundation Chair in Diabetes and Cancer Metabolism, Charles Brenner is the Alfred E Mann Family Foundation Chair in Diabetes and Cancer Metabolism in the Department of Diabetes & Cancer Metabolism. His laboratory focuses on disturbances in nicotinamide adenine dinucleotide (NAD), the central catalyst of metabolism,…

Free

An Overview of Voice and Message Banking for People Living with ALS

Virtual

About the Program: Have you ever thought about Voice or Message Banking, but don’t know where to start? Voice and message banking for people living with ALS can be an emotional, overwhelming, and seemingly complicated task to navigate. However, it doesn’t have to be. Anne Marie will discuss the differences between voice banking, message banking,…

Canceled Weekly HEALEY ALS Platform Trial Webinar

Virtual

Featured Site: Vanderbilt University Medical Center Please join us on Thursday, August 18th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature…

ALS TDI Community Conversations

Virtual

Join the Conversation on August 23 Overview of research at ALS TDI and current clinical trials. Tuesday, August 23, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion…

Free

Stakeholder Call: ACT for ALS Update

Virtual

On June 23, 2022, the FDA unveiled its Action Plan for Rare Neurodegenerative Diseases including Amyotrophic Lateral Sclerosis (ALS) – a five-year strategy for improving and extending the lives of people living with rare neurodegenerative diseases by advancing the development of safe and effective medical products and facilitating patient access to novel treatments. We'd like to cordially…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, August 25th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to Site Investigator…

Free

Virtually bringing comfort & safety to your home

Virtual

About the Event Homes are where we all live, work, play, and thrive. At Prev.ai, we believe that homes should grow with us, and just as our lives change, so should our homes. We are a 100% virtual fall prevention program harnessing computer vision and AI, linked to a network of trained clinicians, to provide…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 1st at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. James Berry, MD, MPH will present this week’s updates on the HEALEY ALS Platform Trial, discuss biomarkers, and answer questions from the audience. James Berry, MD, MPH Dr. Berry is the Director of…

Free

ALSExpert Talk Series: Nicholas John Maragakis, M.D.

Virtual

Using induced pluripotent stem cells as a platform for understanding ALS disease mechanisms and therapeutic development Dr. Maragakis is the Medical Director of the Johns Hopkins ALS Clinical Trials Unit and Director of the ALS Center for Cell Therapy and Regeneration Research and Professor of Neurology at Johns Hopkins University. The Center for ALS Specialty…

Free

Home Automation for People Living with ALS

Virtual

About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off in your home, have become much easier.  Team Gleason’s mission is to have people living with ALS remain as independent as possible no matter where…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to…

Free

Innovation in Clinical Trial Design

Virtual

Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community. Moderators: Gethin Thomas - Executive Director, Research | Motor Neurone Disease Australia Claire Magnussen, PhD - Program Manager, CAPTURE ALS, McGill…

Free

ALS Unfiltered

Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community Engagement and Outreach at the ALS Therapy Development Institute ALS Unfiltered is a series of live presentations and candid conversations about the science of ALS, drug…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Mariah…

Free

ALS Town Hall: Meet Your ALS Orgs

Virtual

ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and…

Free

Modulating Systemic Immunity as Treatment for ALS

Virtual

Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at The University of California San Francisco (UCSF). He has authored over 200 scientific articles in the fields of AIDS, cancer and neurological disease since joining…

Free

C9 CRISPR Conversation with Dr. Claire Clelland

Virtual

The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in the care of patients with dementia, including C9 carriers. Her lab at UCSF is developing novel CRISPR gene editing approaches for dementia and ALS, starting…

Free

ALS Class For First Responders

Virtual

You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have another disability Much more through the question and answer section Jinsy Andrews, MD, MSc, FAAN: Director of Neuromuscular Clinical Trials at Columbia University in the City…

Free

Update on Healey ALS Platform Trial Regimen E: Trehalose for ALS

Virtual

Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Shafeeq Ladha (Barrow Neurological Institute) The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS and illustrate what potential participants can expect when enrolling in Regimen E of the Healey…

Free

Navigating the Challenges of Caregiving for People Living with ALS

Virtual

About the Program: Caregivers undergo changing dynamics and burnout when caring for a loved one. It’s important for others to maintain a more understanding and loving perspective so that they can cope effectively. Please join us on Thursday, October 6 from 12-1 p.m. (CT) for this month’s ALS Learning Series, “Navigating the Challenges of Caregiving…

Free

Voice Banking

Virtual

October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access. Moderator: Sara Feldman – ALS Hope Foundation Panel: Alicia Gibb – MND New South Wales &…

Free

Telemedicine and You: Building Proactive, Personalized Care for all People with ALS

Virtual

We are excited to host EverythingALS Community Event:  Telemedicine and You: Building Proactive, Personalized Care for all People with ALS. -     Brian Wallach, Founder of Synapticure -     Brook Croke, MPH, Certified genetics counselor in the Department of Pediatrics at SIU School  of  Medicine -     Danielle Geraldi Samara , MD , Neurologist -     Dr. Eric Anderson…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, October 20th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to Site Investigator…

Free