ALS Exercise

Title:  ALS Exercise Date: Thu, Apr 20, 2023, 12:00 PM - 1:00 PM CDT Registration link: https://attendee.gotowebinar.com/register/3042676758300304988 About the Program: Many people living with ALS struggle to understand whether it is…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

The 75th AAN Annual Meeting

2023 ANNUAL MEETING The 75th AAN Annual Meeting will be held from April 22-27, 2023, in a hybrid format offering the option to participate in person in Boston or live online.…

5th Neuroimmunology Drug Development Summit

Hello, As the role of the immune system in neurological disease pathophysiology becomes increasingly apparent, comes the 5th Neuroimmunology Drug Development Summit (April 25-27, Boston), an exclusive forum that will unite established and…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

Vince’s Race – Racing for ALS

Register Here! (Registration Opens December 1st @ 5:00 PM EDT.) Pricing - $325 - Fundraising option is available (See section below) Tech Sheet- Updated on 11.30.22 Event Schedule - Updated…

Rare Drug Development Symposium 2023

Join us May 1-3, 2023 in Philadelphia, Pennsylvania for the RARE Drug Development Symposium 2023 The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of…

NEALS Webinar: Tofersen Update

NEALS Webinar: Tofersen Update   Tuesday, May 2, 2023 4:00 PM ET The U.S. Food and Drug Administration (FDA) has granted accelerated approval for tofersen for the treatment of individuals…

Free

Implications of tofersen for everyone with ALS

Implications of tofersen for everyone with ALS   Tuesday, May 2, 2023 4:45 PM ET The FDA’s recent decision to approve tofersen offers direct benefit to people living with SOD1…

Free

STAT Breakthrough Summit 2023

Meet the bio and tech innovators changing medicine This is biology’s century. Amazing new medicines, technologies, and sources of data appear seemingly every day. Never before has the future of…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

ALS Clinic Community and Research Day 2023

Please join us for this year's ALS Clinic Community and Research Day on Saturday, May 6th, 2023 1:00 - 4:00 PM EST.  Charlestown Navy Yard 114 16th Street, Building 114, Room D1…

Cruisin to a Cure

(Lawrenceburg, Ind.) – The early registration period for the 7th annual Cruisin to a Cure for ALS is nearing its end. Those planning to enter the car show have until…

Metascience 2023 Conference

Event Details Metascience 2023 will be an in-person conference on May 9-10, 2023 from 8:30am-5:30pm ET. The registration fee is $85 for students, $150 for non-students. A streaming option will…

The #ALSinDC Flag Event

Dates: May 11th-13th, 2023 (set-up is May 10th) Location: Washington, DC We’re getting excited about our ALS Awareness Month event this year, and we hope you are, too!  Similar to…

Free

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…