The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. Click the link to join.
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join.
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register
REGISTRATION WILL BE OPEN SOON for our COOLEST DAY OF THE YEAR: Our 9th Annual Polar Plunge takes place on 4/6/24! Per usual, we'll be at Rexhame Beach having a parking lot party of a time! Who will YOU plunge for?
Audience Targeting all investigators, clinicians, and industry partners with requirements for neurological and behavioral assessment. This includes the general research community, extramural investigators, clinicians, NIH Intramural Research Program (IRP) investigators, NIH Extramural Research Program staff, NIH leadership, other federal agencies (e.g., FDA, CDC, DoD, VA). Dates April 8, 2024 | 8:30 a.m. – 5:30 p.m.…
The Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and accelerate the development of and access to treatments and cures. Click the link to sign up.
The Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link to sign up.
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS…
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up.
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Second Wednesday of every month from 12-1 p.m. CST is for people who are…
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up.
The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those…
Everything ALS invites you to join them and other people with ALS and families to engage in a positive setting of collaboration and community.
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. Click the link to join.
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join.
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
The AAN Annual Meeting is the largest gathering of neurologists and neuroscience professionals and offers top-tier education, the latest in scientific discoveries, and an abundance of opportunities to connect with friends and colleagues from around the globe.
This is a certified 5k and 1k Fun Run on April 13, 2024 to raise funds for the Division of Neuromuscular Disorders at Vanderbilt University Medical Center (ALS Research). This event is organized by Stacey Baker, whose sister was diagnosed with ALS in 2022. As an avid runner and board member at WilCo Track Club,…
The Hope Through Caring Gala brings together the top minds in ALS research and care, advocacy, industry, and, most importantly, people living with ALS and their families, for one of Chicago's most elegant and prestigious black-tie optional events of the year. Save the date for Saturday, April 13 to celebrate an extraordinary time in ALS research, care, and discovery.…
About the talk: Advanced directives are legal documents that provide instructions for medical care. When living with ALS, it is important to think ahead about what kind of care you may want in the future. Advanced directives are a way to ensure that you, your family, and your ALS care team are all on the same…
The Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link to sign up.
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS…
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up.
How old is the world’s oldest piece of chewing gum? What is a group of unicorns called? What is the most common color of toilet paper in France? And most importantly, why am I asking these ridiculous questions? Well, it’s because I AM ALS is hosting a trivia hour! (Don’t worry, it’s multiple choice, so…
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support. Third Wednesday of every month from 12-1 p.m. CST: People who are loved ones of…