I AM ALS Support Group for people who are loved ones of someone living with ALS.

Zoom

I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support. Third Wednesday of every month from 12-1 p.m. CST: People who are loved ones of…

Event Series I AM ALS Legislative Affairs Team

I AM ALS Legislative Affairs Team

Zoom

The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those…

Free

2024 ALS Outlook

Zoom

Join the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST.  Questions for our Speakers? If you have questions you want to ask during the call, please email info@everythingals.org

Free
Event Series Men of ALS

Men of ALS

2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…

Event Series Caregivers-Only Support Group

Caregivers-Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…

Event Series Women of ALS

Women of ALS

3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…

UCI Neurodegeneration Workshop

Virtual or In Person

2024 UC Irvine Neurodegeneration Community Workshop Registration With support from the Chan Zuckerberg Initiative, we are pleased to announce that the UC Irvine Neurodegeneration Community Workshop will be back in 2024!  Thank you to everyone who helped make our inaugural, virtual workshop in 2022 a success. We have listened to your feedback and we are…

Free

UCI Neurodegeneration Workshop

Virtual or In Person

2024 UC Irvine Neurodegeneration Community Workshop Registration With support from the Chan Zuckerberg Initiative, we are pleased to announce that the UC Irvine Neurodegeneration Community Workshop will be back in 2024!  Thank you to everyone who helped make our inaugural, virtual workshop in 2022 a success. We have listened to your feedback and we are…

Free
Event Series I AM ALS Veterans Team Meeting

I AM ALS Veterans Team Meeting

Zoom

The Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and accelerate the development of and access to treatments and cures. Click the link to sign up.

Free

ALS/MND Platform Trials Update

Virtual

March 27, 2024 8:00 AM Eastern Time (US and Canada) This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, MAGNET and SMART. They will update us on their approach, recruitment, trial eligibility and their latest news.   Moderator: Dr. Nicholas Cole – Chair of Scientific  Advisory Council   Panel: Dr.…

Free
Event Series I AM ALS Legislative Affairs Team

I AM ALS Legislative Affairs Team

Zoom

The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those…

Free

The Role of Multidisciplinary Care in ALS

Virtual

Thursday, March 28 - 12 - 1 PM CST About the Program: Join us for our March ALS Learning Series, where team members and people living with ALS will explore the crucial role of collaboration in delivering holistic care. Discover how multidisciplinary clinics can help people living with ALS to live longer and with a…

Free

I AM ALS Social Hour

Virtual

For those who may not know, social hour is an hour-long meeting where members of the community can come to hang out, chat, and spend time together. We know that the ALS community works hard to advocate for better lives for people living with and impacted by ALS. But we also know that part of…

Free
Event Series Beyond ALS

Beyond ALS

6:30pm ET Join a welcoming group of men and women who have lost a loved one to ALS. Share openly with others who are rebuilding their lives after profound loss. This interactive gathering will highlight where we are now and what may feel different: our identity, our values, our approach to spirituality, and more. We…