I AM ALS Youth Lou Gehrig Day Team
ZoomThe Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living…
Free
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I AM ALS The Write Stuff Team Meeting
ZoomThe Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both…
Free
I AM ALS Clinical Trials Team Meeting
ZoomThe Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding…
Free
Mothers of ALS
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this…
Daytime Soap Stars Unite to END ALS
Embassay Suites Los Angeles Glendale 800 N Central Ave, Glendale, CAJoin us in LA on May 4th! This is one amazing event you won't want to miss! This once in a lifetime event, hosted by Nancy Lee Grahn of ABC's…
Lunch and Learn: Lou Gehrig and ALS Virtual Event
Do you know Lou? Lou Gehrig is one of the greatest baseball players of all time. So much so that Major League Baseball designated June 2nd Lou Gehrig Day. But…
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link…
Free
Fight ALS Film Fest – Gleason
VirtualThis ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS…
I AM ALS Support Group for people living with ALS
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who…
I AM ALS Lou Gehrig Day Team
ZoomThe Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to…
Free
I AM ALS Support Group for people who are current primary caregivers to a loved one with ALS.
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who…
I AM ALS Many Shades of ALS Team Meeting
ZoomThe Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by…
Free
I AM ALS Community Outreach Team
ZoomThe Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
Free
Working to End ALS, Hosted by the Congressional ALS Caucus
Virtual or In PersonHoping to live stream on Mike Quigley's YouTube Channel https://www.youtube.com/@RepMikeQuigley
I AM ALS Legislative Affairs Team
ZoomThe Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop…
Free
Fireside Chats – EverythingALS
ZoomEverything ALS invites you to join them and other people with ALS and families to engage in a positive setting of collaboration and community.
Free
NEALS Webinar: An Overview of The ALS Better Care Act
VirtualJoin Dr. Terry Heiman-Patterson, Dr. Sabrina Paganoni, and Dr. Kelly Gwathmey's discussion of the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that…
Free
I AM ALS Youth Lou Gehrig Day Team
ZoomThe Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living…
Free
I AM ALS The Write Stuff Team Meeting
ZoomThe Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both…
Free
Caregiver to Caregiver
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate…
ALS TDI Community Conversations
VirtualJoin Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…
Free
Weekly HEALEY ALS Platform Trial Webinar – EAP
VirtualSpecial Topic: Expanded Access As part of our weekly webinar series, we will dedicate one Thursday each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs) Please…
Free
I AM ALS: Clinical Trials 101
VirtualWhat: Clinical Trials 101 When: May 9, 2024 6pm ET Where: Zoom I AM ALS’ Clinical Trial Community team will be hosting a monthly webinar series to increase people’s understanding of clinical trials…
Free
Fight ALS Film Fest – Not Going Quietly
VirtualThis ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS…
I AM ALS Veterans Team Meeting
ZoomThe Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and…
Free
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link…
Free
Eyegaze Panel Part Two
ZoomOne of the numerous and devastating challenges associated with ALS is the loss of one’s ability to communicate. This can lead to feelings of isolation, disempowerment, and profound devastation. It…
Fight ALS Film Fest – New Life
VirtualThis ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS…
I AM ALS Support Group for people living with ALS
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who…