I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link…
Free
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NEALS Webinar: The Science Behind ALS Treatments: Riluzole, Radicava, and Relyvrio
Virtual"ALS Treatments: Riluzole, Radicava, and Relyvrio" Presented by the NEALS Information and Community Education (NICE) Working Group Monday, March 18, 2024 at 4:30pm ET Moderated by Senda Ajroud-Driss, this webinar for both…
Free
I AM ALS Support Group for people living with ALS
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who…
Chicagoland Support Group
VirtualMeets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be…
I AM ALS Lou Gehrig Day Team
ZoomThe Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to…
Free
I AM ALS Support Group for people who are loved ones of someone living with ALS.
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who…
I AM ALS Many Shades of ALS Team Meeting
ZoomThe Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by…
Free
I AM ALS Community Outreach Team
ZoomThe Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
Free
I AM ALS Legislative Affairs Team
ZoomThe Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop…
Free
2024 ALS Outlook
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have…
Free
I AM ALS Youth Lou Gehrig Day Team
ZoomThe Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living…
Free
I AM ALS The Write Stuff Team Meeting
ZoomThe Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both…
Free
I AM ALS Clinical Trials Team Meeting
ZoomThe Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding…
Free
Men of ALS
2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched…
Caregivers-Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…
Women of ALS
3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, March 21st, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…
Free
UCI Neurodegeneration Workshop
Virtual or In Person2024 UC Irvine Neurodegeneration Community Workshop Registration With support from the Chan Zuckerberg Initiative, we are pleased to announce that the UC Irvine Neurodegeneration Community Workshop will be back in…
Free
UCI Neurodegeneration Workshop
Virtual or In Person2024 UC Irvine Neurodegeneration Community Workshop Registration With support from the Chan Zuckerberg Initiative, we are pleased to announce that the UC Irvine Neurodegeneration Community Workshop will be back in…
Free
I AM ALS Veterans Team Meeting
ZoomThe Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and…
Free
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link…
Free
Living After Loss (Bereavement Group)
VirtualAn open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to…
I AM ALS Support Group for people living with ALS
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who…
I AM ALS Lou Gehrig Day Team
ZoomThe Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to…
Free
ALS/MND Platform Trials Update
VirtualMarch 27, 2024 8:00 AM Eastern Time (US and Canada) This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, MAGNET and SMART. They will update…
Free
I AM ALS Support Group for Veterans living with ALS
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who…
I AM ALS Many Shades of ALS Team Meeting
ZoomThe Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by…
Free
I AM ALS Community Outreach Team
ZoomThe Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
Free
I AM ALS Legislative Affairs Team
ZoomThe Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop…
Free
I AM ALS Youth Lou Gehrig Day Team
ZoomThe Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living…
Free