ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

ALS TDI Community Conversations

Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

ALS Hope Foundation Gala of Hope

The 5th Annual Gala of Hope Join us for an evening filled with good food, drinks, a silent auction, live entertainment and more! Saturday, April 15, 2023  6:30PM-11:30PM ET Vie by…

Intimacy and ALS

Intimacy and ALS Led by members of the ALS community Tuesday, April 18, 2023 | 5:30 - 7:00pm EDT From dating and relationships to sexuality and your sex life, ALS…

ALS Exercise

Title:  ALS Exercise Date: Thu, Apr 20, 2023, 12:00 PM - 1:00 PM CDT Registration link: https://attendee.gotowebinar.com/register/3042676758300304988 About the Program: Many people living with ALS struggle to understand whether it is…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

The 75th AAN Annual Meeting

2023 ANNUAL MEETING The 75th AAN Annual Meeting will be held from April 22-27, 2023, in a hybrid format offering the option to participate in person in Boston or live online.…

5th Neuroimmunology Drug Development Summit

Hello, As the role of the immune system in neurological disease pathophysiology becomes increasingly apparent, comes the 5th Neuroimmunology Drug Development Summit (April 25-27, Boston), an exclusive forum that will unite established and…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

Vince’s Race – Racing for ALS

Register Here! (Registration Opens December 1st @ 5:00 PM EDT.) Pricing - $325 - Fundraising option is available (See section below) Tech Sheet- Updated on 11.30.22 Event Schedule - Updated…

Rare Drug Development Symposium 2023

Join us May 1-3, 2023 in Philadelphia, Pennsylvania for the RARE Drug Development Symposium 2023 The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of…

NEALS Webinar: Tofersen Update

NEALS Webinar: Tofersen Update   Tuesday, May 2, 2023 4:00 PM ET The U.S. Food and Drug Administration (FDA) has granted accelerated approval for tofersen for the treatment of individuals…

Free