Modulating Systemic Immunity as Treatment for ALS

Virtual

Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at…

Free

C9 CRISPR Conversation with Dr. Claire Clelland

Virtual

The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in…

Free

ALS Class For First Responders

Virtual

You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have…

Free

5th Annual ALS Research Symposium

Virtual

DAY 1 (Thursday, Oct 6th):  10:30 - 10:45am: WELCOME & INTRODUCTIONS 10:45am – 11:45pm CURRENT STATE OF ALS TRIALS MODERATOR: Fernando Vieira, MD 10:45 - 11:05am General overview of ALS Trials:…

Free

Hispanic Heritage Month Social Hour in Spanish

Virtual

Hora Social del Mes de la Herencia Hispana / Hispanic Heritage Month Social Hour Hola. Que pasa? Como estas? Quieres pasar un rato con algunas personas increibles? Quiere conocer a…

Free

5th Annual ALS Research Symposium

Virtual

DAY 2 (Friday, Oct. 7th): MODERATOR: TBD 9:30 - 9:45am: Welcome & Introductions 9:45 - 10:45am: Industry Presentations 9:45-10:05am: AC Immune. Speaker: Tariq Afroz, PhD.  Abstract Title: “Immunotherapy targeting the C-terminal domain of…

Free

2022 Hope and Help Symposium

Rosen Shingle Creek 9939 Universal Blvd, Orlando, FL

Join us for a day of informative demonstrations and sessions for people living with ALS, caregivers, healthcare professionals, and supporters of the ALS community. This unique event has something for…

5th Annual ALS Research Symposium

Virtual

DAY 3 (Tuesday, Oct. 11h) 9:00am - 4:30pm Eastern Time. We proudly present “NEUROTECH NOW”, a collaboration with Indu Navar, Founder of Everything ALS, Dr. Shelena Lalji, Founder of ALS…

Free

Voice Banking

Virtual

October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey…

Free

ALS TDI Summit

Virtual or In Person

Register to Attend the ALS TDI Summit! A free event for the ALS community On Friday, October 14, 2022, from 10:00 - 4:00 p.m. ET, join the ALS community and…

White Coat Affair

Sheraton Boston Hotel 39 Dalton Street, Boston, United States

Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to…

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, October 20th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc…

Free

Celebration of Life

Virtual

Please join us on Saturday, Oct. 22 for the Les Turner ALS Foundation’s Celebration of Life. Led by Support Group Facilitator Anne Lidsky, PhD, this annual service honors those we…

Free

Genetic Counselling

Virtual

Join us in learning more about genetic counselling in ALS/MND. Genetic counsellor Ashley Crook will be providing us with an overview of genetic counselling, different types of genetic testing, and…

Free

ALS TDI Community Conversations

Virtual

Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…

Free

NINDS Strategic Planning Workshop

Virtual

ALS Strategic Planning Workshop We would like to remind and encourage you to register for the virtual ALS Strategic Planning Workshop occurring this week on Wednesday October 26th and Thursday October 27th. A draft strategic plan of…

Free

Newsflash: Amylyx: RELYVRIO!

Virtual

About the Event Dr. Paganoni is an Associate Professor at Harvard Medical School and works as a physician scientist at the Healey Center for ALS at Massachusetts General Hospital and…

Free