Home Automation for People Living with ALS

Virtual

About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz,…

Free

Innovation in Clinical Trial Design

Virtual

Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical…

Free

ALS Unfiltered

Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc…

Free

2022 ALS Walk for Life

Soldier Field 1410 S Museum Campus Drive, Chicago, IL, United States

Join our Les Turner ALS family this year for Chicagoland’s largest gathering of people living with ALS and their friends and family! Teams fundraise in honor or memory of a…

Free

ALS Town Hall: Meet Your ALS Orgs

Virtual

ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our…

Free

Ask Me Anything ALS – Caring for a Parent

Virtual

Register When a parent is diagnosed with ALS, we face the painful reality of losing our lifelong cheerleader earlier than we expected. On top of this grief lies the decision…

Free

Modulating Systemic Immunity as Treatment for ALS

Virtual

Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at…

Free

C9 CRISPR Conversation with Dr. Claire Clelland

Virtual

The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in…

Free

ALS Class For First Responders

Virtual

You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have…

Free

5th Annual ALS Research Symposium

Virtual

DAY 1 (Thursday, Oct 6th):  10:30 - 10:45am: WELCOME & INTRODUCTIONS 10:45am – 11:45pm CURRENT STATE OF ALS TRIALS MODERATOR: Fernando Vieira, MD 10:45 - 11:05am General overview of ALS Trials:…

Free

Hispanic Heritage Month Social Hour in Spanish

Virtual

Hora Social del Mes de la Herencia Hispana / Hispanic Heritage Month Social Hour Hola. Que pasa? Como estas? Quieres pasar un rato con algunas personas increibles? Quiere conocer a…

Free

5th Annual ALS Research Symposium

Virtual

DAY 2 (Friday, Oct. 7th): MODERATOR: TBD 9:30 - 9:45am: Welcome & Introductions 9:45 - 10:45am: Industry Presentations 9:45-10:05am: AC Immune. Speaker: Tariq Afroz, PhD.  Abstract Title: “Immunotherapy targeting the C-terminal domain of…

Free

2022 Hope and Help Symposium

Rosen Shingle Creek 9939 Universal Blvd, Orlando, FL

Join us for a day of informative demonstrations and sessions for people living with ALS, caregivers, healthcare professionals, and supporters of the ALS community. This unique event has something for…

5th Annual ALS Research Symposium

Virtual

DAY 3 (Tuesday, Oct. 11h) 9:00am - 4:30pm Eastern Time. We proudly present “NEUROTECH NOW”, a collaboration with Indu Navar, Founder of Everything ALS, Dr. Shelena Lalji, Founder of ALS…

Free

Voice Banking

Virtual

October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey…

Free