Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Jinsy Andrews from Columbia University. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance of patient…
Dissecting ALS Research articles, with Colin Franz, MD, PhD, Assistant Professor in Physical Medicine and Rehabilitation and Neurology, Shirley Ryan AbilityLabs and Northwestern University. Current treatments for Amyotrophic Lateral Sclerosis (ALS) are lacking, but more are the horizon. Naturally we look to new ALS research studies for hope and solutions, but the information in scientific…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
It’s Saturday, July 3rd in Walnut, IL at 8 AM. 323 S, Main St., Walnut, Illinois 61376 Here is the link to sign up: https://runsignup.com/Race/IL/Walnut/walnut5kforals Hillary Monier 815-303-9355
Dr. Nathan Crone (Johns Hopkins University) discusses the rationale for using brain-computer interfaces to support communication in people with severe motor impairments and describes two clinical trials of implantable brain-computer interfaces at Johns Hopkins.
Biomarkers in ALS/MND July 8 2021, 7:00 - 8:00 AM EST (New York) via Zoom Webinar A biomarker, short for biological marker, is an objective and quantifiable measure of biological processes or states. Biomarkers can be used to deepen our understanding of a disease, or quantify its state and severity, and are critical in clinical trials in determining,…
This is the Inaugural ALS fundraising 2 - day event supporting the OSU Wexner Medical Center, ALS Research Dept lead by Dr Stephen Kolb. You'll have the option to participate in 2 events, Saturday July 10th, will hold a Cycle2ConquerALS, 70 mile bike ride from OSU to Xenia, Ohio in memory of our fallen ALS…
Nutrition Optimization in Patients with ALS, with Brittany Hitson, MS, RD, LDN & Dominique Kosk, MPH, RD, LDN, CNSC About the program: The purpose of this webinar is to help you better understand how ALS impacts nutrition. Each person may experience their own unique set of challenges that may change over time when it comes…
Join Dr. Steven Zeiler, Dr. Terri Thompson and Ed Rapp on July 13th to hear more about the newly launched ALS Companion app and the Answer ALS data portal. Answer ALS is creating a hub of ALS knowledge and resources to help propel the research field forward. Find out how you can help.
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
ALS Town Hall: Exercise and ALS Guest Presenters: Dr. Jonathan Cooper-Knock, Laura Good, and Amanda Beaty Wednesday, July 28, 2021 | 4:00 - 5:30pm EDT In our upcoming Town Hall: Exercise and ALS, we will learn about and discuss two important aspects of the role of physical exercise in ALS, including: Recent findings that intense physical exercise…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
ALSwarrior Virtual 5K Run August 7, 2021 Join us for our 2nd virtual 5K run to help raise funds for ALS Research at ALS Therapy Development Institute ALS Warriors are helping those with ALS to thrive and live life to the fullest. This can be for fun or you can compete for fastest time in…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Many rare diseases have an underlying genetic cause. Individuals and families living with a rare or undiagnosed disorder or those concerned about the risk of a rare disorder can benefit from meeting with a genetic counselor. Genetic counselors are healthcare professionals with advanced training in medical genetics and counseling who work to help families: Understand…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance of…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
About the Program: This webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms, provide helpful tips including tongue and respiratory exercises along with voice banking and communication aid options. Knowing what to expect as your symptoms change can help you make well-informed and timely…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here