San Luis Obispo - ALS Online Support Group Please contact Julie for information on how to join the meeting using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: 831-247-9878 or jscurich@alsagoldenwest.org mailto:reller@alsagoldenwest.org
From Center for Medicare Advocacy - Practical points as well as advocacy topics.
Neuroinflammation is a major driving force in the pathophysiology of the neurodegenerative diseases ALS and Alzheimer Disease. Such neuroinflammation is characterized by alterations of the immune system - primarily the presence of pro-inflammatory macrophages and microglia, as well as dysfunctional regulatory T-lymphocytes (known as Tregs). Together these promote neuronal degeneration and contribute significantly to the…
Bakersfield/Fresno ALS Online upport Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org mailto:reller@alsagoldenwest.org
All-Hawaii Support Group Please contact Regional Care Manager Cindy for information on how to participate via Zoom! Facilitator: Cindy Hatori, MS chatori@alsagoldenwest.org; mailto:tdavis@aslagoldenwest.org; 808-219-9036
Featuring Melinda Kavanaugh, PhD, MSW, LCSW, Associate Professor, Social Work and Director in Social Welfare at the Helen Bader School of Social Welfare at the University of Wisconsin-Milwaukee Despite the growing focus on people living with ALS and their adult caregivers, children and youth caregivers, or “young caregivers,” remain the most hidden…
Pomona Online Support Group Call Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsagoldenwest.org mailto:cgalvan@alsagoldenwest.org
Palo Alto – ALS Online Support Group Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsagoldenwest.org mailto:ssonnicksen@alsagoldenwest.org
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
SAN FRANCISCO COUNTY ALS SUPPORT GROUP 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Taheerah Mujahid, 510-695-2797; tmujahid@alsagoldenwest.org mailto:tmujahid@alsagoldenwest.org
JOHN GILL CENTRAL COAST - ALS SUPPORT GROUP 2:00 - 4:00 PM Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@als mailto:jscurich@alsagoldenwest.org
Please connect with us for a time of collaboration and learning! A VERY SPECIAL EverythingALS Patient Community Zoom Meeting will occur Sunday, March 28th at 1 PM Pacific TIme We encourage you to participate in this call hosted by EverythingALS and ALS Hope Foundation. Join our speakers Mary Holt-Paolone, MSRN, and Marie Bishop as they discuss this very important…
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
Announcing a new NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, the clinical trial site level overview, and the importance of patient engagement. In this installment of…
Our March webinar focused on talking with children about ALS. In April, we shift the discussion to how children cope with grief and loss. This webinar integrates Dr. Kavanaugh’s clinical expertise and many years of research with children and youth in families with neurological disorders, to guide families in starting the conversation about death and…
Join us for the second installment of the NEALS webinar series on ALS drug development moderated by Dr. Jinsy Andrews from Columbia University. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, the clinical trial site level overview, and the importance of patient engagement. In…
Meets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Time: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
This is bimonthly event
SAVE THE DATE Women & The Brain: Thursday, April 22nd, time TBD
Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…