Please connect with us for a time of collaboration and learning! A VERY SPECIAL EverythingALS Patient Community Zoom Meeting will occur Sunday, March 28th at 1 PM Pacific TIme We encourage you to participate in this call hosted by EverythingALS and ALS Hope Foundation. Join our speakers Mary Holt-Paolone, MSRN, and Marie Bishop as they discuss this very important…
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
Announcing a new NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, the clinical trial site level overview, and the importance of patient engagement. In this installment of…
Our March webinar focused on talking with children about ALS. In April, we shift the discussion to how children cope with grief and loss. This webinar integrates Dr. Kavanaugh’s clinical expertise and many years of research with children and youth in families with neurological disorders, to guide families in starting the conversation about death and…
Join us for the second installment of the NEALS webinar series on ALS drug development moderated by Dr. Jinsy Andrews from Columbia University. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, the clinical trial site level overview, and the importance of patient engagement. In…
Meets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Time: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
SAVE THE DATE Women & The Brain: Thursday, April 22nd, time TBD
Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Please join us on Thursday, April 29th at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD will present this week’s updates on the HEALEY ALS Platform Trial with guest speaker Eduardo Locatelli, MD, MPH, from Holy Cross Hospital and answer questions from the audience. Click here to register! If you have…
ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS Biorepository is housed at the Healey Center for ALS at Mass General Hospital and Barrow Neurological Institute and overseen by the NEALS Biorepository Committee. Samples and data…