This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to…
About the Event Dr. Heiman-Patterson is the Director of the Center for Neurodegenerative Disorders and a Professor in the Department of Neurology at the Lewis Katz School of Medicine at…
Speakers: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Nazem Atassi (Sanofi) The webinar discussion will include the mechanism of action of RIPK1…
Dr. Richard Bedlack grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia, then back to Connecticut for an MD and…
Thursday, December 1st, 5:00 pm EST: Weekly Q&A with guest speaker Catherine Douthwright PhD, CCRP from UMass Worcester- Click here to register Catherine Douthwright PhD, CCRP Catherine brings years of previous…
ALS brings with it a lot of uncertainty and loss emotionally and physically – for the person living with ALS and their caregivers and loved ones. As a caregiver, you’ll experience many…
About the Event Dr. Merit Cudkowicz is the Director of the Sean M. Healey & AMG Center for ALS, Chief of Neurology at Mass General, Director and the Julieanne Dorn…
About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression.…
Please join us on Thursday, December 8th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, and Merit Cudkowicz,…
Are you looking to share your story with a broader audience or increase the scope of your advocacy? If so, using social media platforms like Twitter may help. If you…
McFinn Lovere ALS ADVOCATE We are excited to host EverythingALS Community Event: Share your Tips and Tricks for Living with ALS We invite you to EverythingALS Community “Tips and Tricks”…
Special Topic: Regimen C Updates Please join us on Thursday, January 12 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni,…
About the Program: Join us for our January ALS Learning series with Dr. Paul Mehta to learn how the National ALS Registry helps advance research. Dr. Mehta will discuss how…
You’ve heard of advocating for ALS, you’ve heard of organizing for ALS, but have you ever heard of…mapping it? That’s right, I said mapping! He has created many maps for…
Learn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael…
Weekly Q&A with guest speaker Jonathan Katz, MD, Site Investigator at CPMC
They say a picture is worth a thousand words, which means pictures are pretty powerful. Would you like to harness the power of photos and videos to help enhance your…