Navigating Advanced Directives
VirtualAbout the talk: Advanced directives are legal documents that provide instructions for medical care. When living with ALS, it is important to think ahead about what kind of care you may…
Free
30 events found.
Education
ALS Town Hall: Discover Roon – Your Ultimate ALS Resource
VirtualDiscover Roon: Your Ultimate ALS Resource for Answers to All Your Questions: Wednesday, April 17, 2024 | 3:00 - 4:00pm EDT Join us on April 17, 2024 for an ALS…
Mental Health In ALS/MND
VirtualApril 24, 2024 9:00 AM Eastern Time (US and Canada) This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how…
Free
Constipation in People Living with ALS: Does Autonomic Dysfunction Play A Role?
VirtualJoin us for an insightful session with Dr. Ghazala Hayat, MD, FAAN, FANA, FAANEM, as we delve into the prevalence and challenges of constipation in people living with ALS. Dr.…
BLOWING UP THE PIPELINE: Stories from the frontlines of the ALS Revolution
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness…
Free
Working to End ALS, Hosted by the Congressional ALS Caucus
Virtual or In PersonHoping to live stream on Mike Quigley's YouTube Channel https://www.youtube.com/@RepMikeQuigley
NEALS Webinar: An Overview of The ALS Better Care Act
VirtualJoin Dr. Terry Heiman-Patterson, Dr. Sabrina Paganoni, and Dr. Kelly Gwathmey's discussion of the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that…
Free
Weekly HEALEY ALS Platform Trial Webinar – EAP
VirtualSpecial Topic: Expanded Access As part of our weekly webinar series, we will dedicate one Thursday each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs) Please…
Free
I AM ALS: Clinical Trials 101
VirtualWhat: Clinical Trials 101 When: May 9, 2024 6pm ET Where: Zoom I AM ALS’ Clinical Trial Community team will be hosting a monthly webinar series to increase people’s understanding of clinical trials…
Free
Expanded Access 101
VirtualExpanded Access 101 - Presented by the Working Group on Compassionate Use & Preapproval Access (CUPA) Date & Time May 15, 2024 12:00 PM Description Our annual introductory webinar covering…
Free
Brain Computer Interface (BCI) Trails in ALS
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness…
Free
Access for ALL in ALS (ALL ALS) Consortium
VirtualNational Institutes of Health (NIH) funded “ALL ALS” consortium is a multi-institutional effort that aims to organize the ALS clinical research landscape in the US. ALL ALS is operating in…
Free
Respiratory Support in ALS/MND
VirtualMay 29, 2024 7:00 AM Eastern Time (US and Canada) This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what…
Free
RAPA Therapeutics Expanded Access Program: Epigenetically Reprogrammed T Stem Cell Therapy
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness…
Free
Developing tools to help people living with ALS make difficult decisions
VirtualAbout the program: People living with ALS must make many complex decisions regarding their future care needs, which can be stressful and overwhelming. In our upcoming ALS Learning Series, with Dr. Anne…
Free
Promising Alternative and Off-Label Treatments for ALS
VirtualIn this educational webinar, Dr. Richard Bedlack of ALSUntangled will review what he considers to be the most promising alternative and off-label ALS treatments currently. These products, which include vitamins,…
Free
Pridopodine for treatment of ALS
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness…
Free
Respiratory Care in ALS: ADVANCES IN REMOTE MONITORING
VirtualJoin us for this inaugural webinar, which marks the beginning of our four-part NEALS Community Education series on advances in respiratory care in ALS. This series, organized by the NEALS Respiratory Care and Ventilation Committee, will focus on respiratory assessment…
Free
Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life Report Launch Event
VirtualEvent description: Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, fatal neurological disease. Individuals affected by ALS include those living with ALS, their caregivers and families, at-risk ALS…
Free
How To Control Your Phone With Your Voice
VirtualAbout the program: What can you do to control your phone or tablet, when tapping on the screen becomes difficult? June's ALS Learning Series will describe in detail how to control…
Free