ALS TDI Town Hall
VirtualALS Patient Fellows Share Insights from the ALS MND Symposium ALS Patient Fellows Share Insights from the ALS MND Symposium Thursday, January 25, 2024 | 3:00 - 4:00pm EDT Participate…
Free
30 events found.
Education
National ALS Registry: Learn How You Can Join the Fight Against ALS Confirmation
ZoomThe National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States…
Free
Weekly HEALEY ALS Platform Trial Webinar – CNM-Au8 Update with Clene Nanomedicine
VirtualPlease join us on Thursday, January 25th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and…
Free
Genetic ALS / FTD Research Education Series: Focus on C9orf72
VirtualAbout the event Around 140,000 or more healthy people in the United States have C9orf72 repeat expansions, a few thousand more with a current ALS or FTD diagnosis - what…
A conversation with a genetic counselor: Could the ALS in my family be genetic?
About the Presentation: Navigating ALS care can be complicated and filled with many complex decisions, including whether genetic testing is right for you. Join us for a discussion with genetic…
Free
Genetic ALS / FTD Research Education Series: Focus on Progranulin (GRN)
VirtualAbout the event Up to 50,000 healthy people in the United States have pathogenic GRN variants, and about one thousand more have an active FTD diagnosis - what research is…
How to Slow ALS Progression
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualAs part of our weekly webinar series, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, February…
Free
Bridging the Gap: The Crucial Role of Collaborative Pre-Clinical Research
VirtualTuesday, February 13, 2024 4:00 - 5:00 PM ET Please join us for a conversation with Dr. Christine Vande Velde (Robert Packard Center for ALS Research), Erin Fleming (Project ALS),…
Free
A Comprehensive & Integrative Medicine Approach to ALS
VirtualSpeaker Series: A Comprehensive & Integrative Medicine Approach to ALS Sunday, Feb. 18, 2024, 1:00 - 2:00 pm ET Presented by Shelena C. Lalji, M.D., F.A.C.O.G. Functional Medicine Physician,…
Free
2024 ALS Reversals Update
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualThursday, February 22nd, 5:00 pm EST: Genetics Discussion with Dr. Mark Garret (Mass General Hospital) Mark Garret, MD Dr. Garret is a neurologist and researcher at the Sean M. Healey &…
Free
Unveiling the ALS Trial Navigator – Empowering Your Trial Search
VirtualUnveiling the ALS Trial Navigator - Empowering Your Trial Search Watch a live demo of this innovative platform and get your questions answered! Tuesday, February 27, 2024 | 3:00 -…
Free
The Benefits of Macronutrients in Patients with ALS: What Should We Eat?
VirtualDr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on…
Free
Families with ALS
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualAs part of our weekly webinar series, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs). Please join…
Free
NEALS Webinar: The Science Behind ALS Treatments: Riluzole, Radicava, and Relyvrio
Virtual"ALS Treatments: Riluzole, Radicava, and Relyvrio" Presented by the NEALS Information and Community Education (NICE) Working Group Monday, March 18, 2024 at 4:30pm ET Moderated by Senda Ajroud-Driss, this webinar for both…
Free
2024 ALS Outlook
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, March 21st, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…
Free
ALS/MND Platform Trials Update
VirtualMarch 27, 2024 8:00 AM Eastern Time (US and Canada) This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, MAGNET and SMART. They will update…
Free
The Role of Multidisciplinary Care in ALS
VirtualThursday, March 28 - 12 - 1 PM CST About the Program: Join us for our March ALS Learning Series, where team members and people living with ALS will explore…
Free
ALS Town Hall: Light the Way – A New Approach to Genetic Testing
VirtualA new approach to genetic testing for patients and family members at risk of ALS Wednesday, April 3, 2024 | 3:00 - 4:00pm EDT Participate in our upcoming ALS Town…
Free