Moving research forward using Answer ALS resources
VirtualJoin Dr. Steven Zeiler, Dr. Terri Thompson and Ed Rapp on July 13th to hear more about the newly launched ALS Companion app and the Answer ALS data portal. Answer ALS…
Join Dr. Steven Zeiler, Dr. Terri Thompson and Ed Rapp on July 13th to hear more about the newly launched ALS Companion app and the Answer ALS data portal. Answer ALS…
ALS Town Hall: Exercise and ALS Guest Presenters: Dr. Jonathan Cooper-Knock, Laura Good, and Amanda Beaty Wednesday, July 28, 2021 | 4:00 - 5:30pm EDT In our upcoming Town Hall: Exercise…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Many rare diseases have an underlying genetic cause. Individuals and families living with a rare or undiagnosed disorder or those concerned about the risk of a rare disorder can benefit…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from Duke ALS Clinic. This series will include talks on…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
About the Program: This webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms, provide helpful tips including tongue and…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
EverythingALS is excited for our next speaker on September 8th 4pm PT | 7pm ET! Dr. Michael Benatar from University of Miami will discuss Symptomatic & Pre-symptomatic Biomarkers for ALS…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
EverythingALS is excited for our next speaker on September 22nd 4pm PT | 7pm ET! Dr. Richard Bedlack is currently a Professor of Neurology at Duke University, and Director of…
Please join Dr. Merit Cudkowicz and Dr. Sabrina Paganoni for a conversation about recent updates on AMX0035 (sodium phenylbutyrate/taurursodiol) and to review details of the Phase 3 PHOENIX Study (Study…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
This webinar will identify solutions for communication and use of smart phones, tablets, and computers as ALS can affect your speech and ability to use these devices. This course will focus…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
EverythingALS is excited for our next speaker on October 6th 4pm PT | 7pm ET! Clive Svendsen, Ph.D., executive director of Cedars-Sinai’s Board of Governors Regenerative Medicine Institute, has a…
The decision to have genetic testing for a familial ALS gene is important and may have implications for those interested in starting a family. This talk will review family planning…
Join A Long Swim on Monday, October 18, 2021, at 7:00 pm CST for an intimate talk with the recipient of the Ellen McConnell Blakeman ALS Research Fellowship at Northwestern…
Save the date for the 11th Annual Les Turner Symposium on ALS on Monday, November 8, 2021. The Symposium features presentations from leading ALS clinicians and researchers, including members of…
Join this Hospice and Palliative Care webinar to learn how to talk with your loved ones about ALS end-of-life care, what to say, and most importantly, when to say it.…
Please join us to learn about COURAGE-ALS, a global phase 3 trial of reldesemtiv currently enrolling participants.
During this webinar, you will learn how to use the new My ALS Decision Tool™. This groundbreaking decision tool is a web-based, interactive series of questions and considerations which can…
During this webinar, the presenters will be discussing symptoms of mobility weakness and how ALS affects mobility. You will learn about a variety of mobility aids to assist you in…
Please join us on February 24th for a webinar to learn about a new Phase 2a trial of Oral LAM-002A capsules for individuals with C9ORF72 positive ALS.
Zoom Meeting: https://us02web.zoom.us/j/9696329782 Password: 0316 We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are…
Making Activities of Daily Life Easier in ALS - Thursday, March 17, 2022 from Noon to 1:00pm CT About the Program: This webinar will focus on how ALS may impact your…