Please join us for the Regimen F Drug Science Q&A Webinar on Monday, March 27th from 5:00-6:00 pm Eastern time. This webinar is open to all, and it serves as a great opportunity to learn more about the science and mechanism of action behind Regimen F, the most recent addition to the HEALEY ALS Platform Trial. Sabrina Paganoni, MD,…
Tuesday, March 28, 2023 12:30 PM ET Please join us for a webinar update on tofersen moderated by NEALS Co-Chair Dr. Jinsy Andrews. Dr. Timothy Miller will provide background on tofersen and updates from the March 22nd FDA Advisory Committee Meeting. Holly Fernandez Lynch, an expert in FDA pharmaceutical policy and regulatory standards, will be…
Familial or sporadic ALS/MND, the importance of genetic counselling and testing cant be emphasized enough. Join us for this scenario-based discussion which will look at real situations ranging from an ALS/MND asymptomatic carrier to someone whose parent had ALS/MND, but has not done genetic testing.
Join us for an educational overview of the Advanced Research Projects Agency for Health (ARPA-H), the new government agency proposed by President Biden to improve the government’s ability to speed biomedical and health solutions. This agency was created to support transformative research and development to drive biomedical and health breakthroughs – ranging from molecular to…
***If you’ve signed up already in 2023, there’s no need to do it again. You will be added to the calendar invite.*** March is marching along, but let’s take a break to just hang out together. For those who may not know, social hour is an hour-long meeting where members of the community can come…
The ALS Research Collaborative (ARC) and ARC Data Commons Discussion and demo led by Dr. Fernando Vieira Thursday, April 6, 2023 | 3:00 - 4:00pm EDT On Thursday, April 6, 2023 at 3:00 pm ET, join a special ALS TDI Town Hall to hear Dr. Fernando Vieira, CEO and CSO at ALS TDI, provide an overview…
Prof Guillaume Hautbergue is an expert in RNA biology and he and his lab recently published on a peptide that was able to prevent the death of nerve cells and protect them from degeneration in C9orf72-ALS/FTD animal models. He also recently reported a gene therapy approach targeting the same biological process. More Information: https://www.sheffield.ac.uk/neuroscience-institute/news/scientists-discover-how-prevent-death-nerve-cells-most-common-genetic-forms-mnd-and-dementia
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
The 5th Annual Gala of Hope Join us for an evening filled with good food, drinks, a silent auction, live entertainment and more! Saturday, April 15, 2023 6:30PM-11:30PM ET Vie by Cescaphe, 600 N Broad St, Philadelphia, PA Guests speakers to include ALS Hope Foundation President, Dr. Terry Heiman-Patterson; representatives from Temple Health; and Joel Goldhirsh and Keynote Speaker Dr.…
Intimacy and ALS Led by members of the ALS community Tuesday, April 18, 2023 | 5:30 - 7:00pm EDT From dating and relationships to sexuality and your sex life, ALS changes a lot. This special 1.5-hour-long ALS Town Hall will attempt to cover the many ways that intimacy can be affected by ALS, while also discussing how…
About the Event Dr. Ajami is an Assistant Professor of Immunology and Behavioral and Systems Neuroscience at OHSU. Her research is focused on how immune cells provokes the pathology in different neurodegenerative diseases. Her work aims at describing immune pathways that leads to the damage to the brain tissue and ultimately discover the molecules that…
Title: ALS Exercise Date: Thu, Apr 20, 2023, 12:00 PM - 1:00 PM CDT Registration link: https://attendee.gotowebinar.com/register/3042676758300304988 About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at…
2023 ANNUAL MEETING The 75th AAN Annual Meeting will be held from April 22-27, 2023, in a hybrid format offering the option to participate in person in Boston or live online. REGISTER NOW Already registered? Browse Program The Annual Meeting is exciting and diverse, with its seemingly endless choices and learning formats of top-tier education in every topic and specialty…
Hello, As the role of the immune system in neurological disease pathophysiology becomes increasingly apparent, comes the 5th Neuroimmunology Drug Development Summit (April 25-27, Boston), an exclusive forum that will unite established and emerging innovators in the expanding neuroimmunology space, providing actionable takeaways across neuroglia modeling, novel neuroimmunological targeting and neuroinflammatory biomarker discovery. View your copy of the industry-dedicated 2023 program packed with brand-new…
Register Here! (Registration Opens December 1st @ 5:00 PM EDT.) Pricing - $325 - Fundraising option is available (See section below) Tech Sheet- Updated on 11.30.22 Event Schedule - Updated on 11.30.22 (Subject to change) Photos - Luis Vivar (LuVshots) will be onsite to capture complimentary pictures of your car on track. Willow Springs International Raceway…
The Latest News from Massachusetts General Hospital with Dr. Suma Babu, from the MGH Healey Center for ALS Sunday, April 30, 1:00 - 2:00 p.m. ET Join us for an informative talk by Dr. Suma Babu, sharing with us the latest research developments at the Healey Center for ALS, and highlighting some of the important…
Join us May 1-3, 2023 in Philadelphia, Pennsylvania for the RARE Drug Development Symposium 2023 The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. RDDS 2023 focuses on…
NEALS Webinar: Tofersen Update Tuesday, May 2, 2023 4:00 PM ET The U.S. Food and Drug Administration (FDA) has granted accelerated approval for tofersen for the treatment of individuals with superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS). Join Dr. Timothy Miller for a webinar update following the FDA’s recent announcement moderated by NEALS…
Implications of tofersen for everyone with ALS Tuesday, May 2, 2023 4:45 PM ET The FDA’s recent decision to approve tofersen offers direct benefit to people living with SOD1 ALS, and offers hope to everyone else living with ALS as well. Join the team from The ALS Association to discuss the implications of this…
Meet the bio and tech innovators changing medicine This is biology’s century. Amazing new medicines, technologies, and sources of data appear seemingly every day. Never before has the future of health and medicine been so promising. With this promise comes new hurdles and exciting challenges. Join us at biotech’s event horizon to discuss how to…
Please join us for this year's ALS Clinic Community and Research Day on Saturday, May 6th, 2023 1:00 - 4:00 PM EST. Charlestown Navy Yard 114 16th Street, Building 114, Room D1 A remote zoom option is available, please indicate if you will be joining virtually or in person via the Eventbrite link Join us for…
