ALS TDI cordially invites you to the Saturday, October 28, 2023 | 6pm Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the…
Mark your calendar for the 2023 AANEM Annual Meeting, scheduled for November 1-4 at the JW Marriott Desert Ridge in Phoenix, AZ. The 2023 meeting will offer valuable in-person sessions, hands-on workshops, and social events, as well as an option to participate virtually. Physicians, technologists, and other healthcare professionals are invited to learn about the latest in NM, MSK, EDX, and…
Location: Bowtie Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register
Location: Village East Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Our 17th Annual Casino Night is Almost Here Step into a night of excitement at the 17th annual All In For ALS Casino Night on Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago. Immerse yourself in the thrill of live blackjack, roulette, and craps while supporting the Les Turner ALS Foundation—the…
Dear Healey & AMG Center for ALS Community, We invite you to join us on Sunday, November 5th for the annual Pete Frates 5k at Lynch Park,in Beverly MA at 10:00 a.m. Last year, Over $70,000 was raised to support the addition of a psychologist / psychiatric mental-health nurse practitioner to the ALS multidisciplinary care team. This year, all proceeds will benefit…
The 2023 Les Turner Symposium on ALS will be held virtually and in-person at Northwestern Memorial Hospital in Chicago on Monday, Nov. 6. The Les Turner Symposium on ALS has featured presentations from leading ALS scientists and clinicians, as well as people living with ALS; plus research posters, a Q&A panel and more. The symposium…
n February 2023, the National Institute of Neurological Disorders and Stroke (NINDS), the lead institute for Amyotrophic Lateral Sclerosis (ALS) research within the National Institutes of Health (NIH), completed a strategic planning process to identify the highest priorities for research that will lead to the discovery of effective interventions for the diagnosis, treatment, management, prevention,…
In a few weeks, the world will be in the middle of the season of gratitude, joy and peace. As we enter the season of shopping, cooking and caroling, where does amyotrophic lateral sclerosis (ALS) fit in? Even during the holidays, individuals and families living with and/or impacted by ALS are forced to deal with…
I AM ALS will be hosting a town hall with BrainStorm Cell Therapeutics on Tuesday (11/7) at 1pm ET. This town hall is an opportunity for you to hear directly from BrainStorm about next steps, clarify any questions or uncertainty about their process with the FDA, and learn about the path forward for NurOwn. In order…
Reel Abilities Film Festival Date: Wednesday November 8, 2023 Time: 11:00AM– 1:00PM Location: Pope Lecture Hall, 2641 John F. Kennedy Blvd, Jersey City, NJ 07306 This film, “No Ordinary Campaign” focuses on one couple’s fight to reclaim their future after an ALS diagnosis became a movement for millions of patients seeking to find their voice in…
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
Heading into the new year, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, November 9th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs with our guest host, Dr. Suma Babu of Massachusetts General…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
No Ordinary Campaign at Alexandria VA Film Festival Brian Wallach was diagnosed with ALS at 37. He and his wife’s fight to reclaim their future from a brutal disease has snowballed into a movement with resounding ramifications not only for the ALS community, but for millions of patients seeking to find their voice in our…
Join Us in Washington, D.C.! Neuroscience 2023 will be held at the Walter E. Washington Convention Center in Washington, D.C., November 11-15, 2023. Each year, scientists from around the world congregate to discover new ideas, share their research, and experience the best the field has to offer. Attend so you can: present research, network with…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
One of the prominent threads present in the ALS community is the power of storytelling. Storytelling is cathartic. It evokes empathy, builds connection, and makes people feel less alone. It has the potential to help us simultaneously step outside of ourselves and look inward. Storytelling comes in many mediums, from more formal books and essays…
This year's event will be held on November 16th & 17th and, as we did at our symposium last year, we are thrilled to feature a full day dedicated to neurotechnology on Monday, November 20th. Stay tuned for details and how to submit an abstract for consideration. In the meantime, please save the date for…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
Special Topic: Regimen G Drug Science Curious about the science behind Regimen G of the HEALEY ALS Platform Trial? Join us for our weekly webinar on Thursday, November 16th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) where scientists from Denali Therapeutics will provide an overview about DNL343 and answer your questions. Dr. Sabrina Paganoni of…
