30 events found.
Beyond ALS
6:30pm ET Join a welcoming group of men and women who have lost a loved one to ALS. Share openly with others who are rebuilding their lives after profound loss. This interactive gathering will highlight where we are now and what may feel different: our identity, our values, our approach to spirituality, and more. We…
Go On Be Brave Screening: Boston, MA
Location: Landmark Kendall Square Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
ALS TDI Summit 2023
Sheraton Boston Hotel 39 Dalton Street, Boston, United StatesALS TDI Summit 2023 A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 Boston Sheraton Hotel 39 Dalton St, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is…
Free
ALS TDI Summit
A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 | 10am Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Go On, Be Brave Screening
GO ON, BE BRAVE SCREENING, Meet Andrea Lytle Peet Friday, October 27, 2023 | 7:30pm Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 After the ALS TDI Summit
White Coat Affair
Sheraton Boston Hotel 39 Dalton Street, Boston, United StatesALS TDI cordially invites you to the Saturday, October 28, 2023 | 6pm Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the…
AANEM Annual Meeting
Mark your calendar for the 2023 AANEM Annual Meeting, scheduled for November 1-4 at the JW Marriott Desert Ridge in Phoenix, AZ. The 2023 meeting will offer valuable in-person sessions, hands-on workshops, and social events, as well as an option to participate virtually. Physicians, technologists, and other healthcare professionals are invited to learn about the latest in NM, MSK, EDX, and…
Go On Be Brave Screening: New Haven, CT
Location: Bowtie Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Mothers of ALS
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register
Go On Be Brave Screening: New York, NY
Location: Village East Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Les Turner Casino Night
Our 17th Annual Casino Night is Almost Here Step into a night of excitement at the 17th annual All In For ALS Casino Night on Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago. Immerse yourself in the thrill of live blackjack, roulette, and craps while supporting the Les Turner ALS Foundation—the…
Pete Frates 5K
Dear Healey & AMG Center for ALS Community, We invite you to join us on Sunday, November 5th for the annual Pete Frates 5k at Lynch Park,in Beverly MA at 10:00 a.m. Last year, Over $70,000 was raised to support the addition of a psychologist / psychiatric mental-health nurse practitioner to the ALS multidisciplinary care team. This year, all proceeds will benefit…
Les Turner Symposium on ALS
The 2023 Les Turner Symposium on ALS will be held virtually and in-person at Northwestern Memorial Hospital in Chicago on Monday, Nov. 6. The Les Turner Symposium on ALS has featured presentations from leading ALS scientists and clinicians, as well as people living with ALS; plus research posters, a Q&A panel and more. The symposium…
ACT for ALS & ALS Strategic Priorities Community Update
Virtualn February 2023, the National Institute of Neurological Disorders and Stroke (NINDS), the lead institute for Amyotrophic Lateral Sclerosis (ALS) research within the National Institutes of Health (NIH), completed a strategic planning process to identify the highest priorities for research that will lead to the discovery of effective interventions for the diagnosis, treatment, management, prevention,…
Free
Let’s Talk About It-November
In a few weeks, the world will be in the middle of the season of gratitude, joy and peace. As we enter the season of shopping, cooking and caroling, where does amyotrophic lateral sclerosis (ALS) fit in? Even during the holidays, individuals and families living with and/or impacted by ALS are forced to deal with…
Free
I AM ALS Town Hall with BrainStorm Cell Therapeutics
I AM ALS will be hosting a town hall with BrainStorm Cell Therapeutics on Tuesday (11/7) at 1pm ET. This town hall is an opportunity for you to hear directly from BrainStorm about next steps, clarify any questions or uncertainty about their process with the FDA, and learn about the path forward for NurOwn. In order…
Free
No Ordinary Campaign Screening
Reel Abilities Film Festival Date: Wednesday November 8, 2023 Time: 11:00AM– 1:00PM Location: Pope Lecture Hall, 2641 John F. Kennedy Blvd, Jersey City, NJ 07306 This film, “No Ordinary Campaign” focuses on one couple’s fight to reclaim their future after an ALS diagnosis became a movement for millions of patients seeking to find their voice in…
Caregiver to Caregiver
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
Weekly HEALEY ALS Platform Trial Webinar
VirtualHeading into the new year, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, November 9th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs with our guest host, Dr. Suma Babu of Massachusetts General…
Free
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
No Ordinary Campaign Screening
No Ordinary Campaign at Alexandria VA Film Festival Brian Wallach was diagnosed with ALS at 37. He and his wife’s fight to reclaim their future from a brutal disease has snowballed into a movement with resounding ramifications not only for the ALS community, but for millions of patients seeking to find their voice in our…
Neuroscience 2023
Join Us in Washington, D.C.! Neuroscience 2023 will be held at the Walter E. Washington Convention Center in Washington, D.C., November 11-15, 2023. Each year, scientists from around the world congregate to discover new ideas, share their research, and experience the best the field has to offer. Attend so you can: present research, network with…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Free
Podcasting Panel
ZoomOne of the prominent threads present in the ALS community is the power of storytelling. Storytelling is cathartic. It evokes empathy, builds connection, and makes people feel less alone. It has the potential to help us simultaneously step outside of ourselves and look inward. Storytelling comes in many mediums, from more formal books and essays…
Free