ALSA Greater Chicago Support Group

Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

Tucker Toss Cornhole Tournament

Saturday October 21st 2023 • 11:00 am DuxPlex Athletic Complex, 50 Railroad Avenue, Duxbury, MA

Living After Loss (Bereavement Group)

Virtual

An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will…

NEALS Conference 2023 Recap for the ALS Community

Dear MGH-ALS Community, Darlene Sawicki and Sarah Luppino, Nurse Practitioners at the MGH ALS Multidisciplinary Clinic, will share what they learned at the NEALS 2023 conference with the ALS community. Please join us for this webinar on Wednesday, October 25th at 2 pm ET. Best, Your ALS Team at the Healey & AMG Center at Mass…

October Social Hour

Zoom

***If you’ve signed up already in 2023, there’s no need to do it again. You will be added to the calendar invite.*** It may be spooky season, but everything feels less spooky when you’re among friends. Join us for Social Hour on October 24th from 4-5 PM ET to spend time with your fellow advocates. For…

Free

ALS Association Greater Sacramento Chapter Transitions Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…

Free

Go On Be Brave Screening: Boston, MA

Location: Boston Museum of Science, Mugar Omni Theater - IMAX Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states.…

Ethical Principles & Informed Consent in Research

Virtual

Title: Ethical Principles & Informed Consent in Research Date/Time:  Thursday, October 26th, 2023 at noon CST Discover the crucial role of informed consent in research at our October ALS Learning Series. Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine, will unravel the history of informed consent, guide you…

ALS TDI Open House

ALS TDI OPEN HOUSE Thursday, October 26, 2023 | 4pm-6pm ALS TDI research lab 480 Arsenal Street, Suite 201, Watertown, MA 02472 The weekend will kick-off with the ALS TDI Open House at the ALS TDI research lab in Watertown, MA. Here, community members can enjoy light appetizers and cocktails while exploring our state-of-the-art lab…

Beyond ALS

6:30pm ET Join a welcoming group of men and women who have lost a loved one to ALS. Share openly with others who are rebuilding their lives after profound loss. This interactive gathering will highlight where we are now and what may feel different: our identity, our values, our approach to spirituality, and more. We…

Go On Be Brave Screening: Boston, MA

Location: Landmark Kendall Square Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer

ALS TDI Summit 2023

Sheraton Boston Hotel 39 Dalton Street, Boston, United States

ALS TDI Summit 2023 A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 Boston Sheraton Hotel 39 Dalton St, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is…

Free

ALS TDI Summit

A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 | 10am Sheraton Boston Hotel  39 Dalton Street, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…

Go On, Be Brave Screening

GO ON, BE BRAVE SCREENING, Meet Andrea Lytle Peet Friday, October 27, 2023 | 7:30pm Sheraton Boston Hotel  39 Dalton Street, Boston, MA 02199 After the ALS TDI Summit

White Coat Affair

Sheraton Boston Hotel 39 Dalton Street, Boston, United States

ALS TDI cordially invites you to the   Saturday, October 28, 2023 | 6pm Sheraton Boston Hotel  39 Dalton Street, Boston, MA 02199 Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the…

AANEM Annual Meeting

Mark your calendar for the 2023 AANEM Annual Meeting, scheduled for November 1-4 at the JW Marriott Desert Ridge in Phoenix, AZ. The 2023 meeting will offer valuable in-person sessions, hands-on workshops, and social events, as well as an option to participate virtually. Physicians, technologists, and other healthcare professionals are invited to learn about the latest in NM, MSK, EDX, and…

Go On Be Brave Screening: New Haven, CT

Location: Bowtie Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer

Mothers of ALS

Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register

Go On Be Brave Screening: New York, NY

Location: Village East Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…

Les Turner Casino Night

Our 17th Annual Casino Night is Almost Here Step into a night of excitement at the 17th annual All In For ALS Casino Night on Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago. Immerse yourself in the thrill of live blackjack, roulette, and craps while supporting the Les Turner ALS Foundation—the…

Pete Frates 5K

Dear Healey & AMG Center for ALS Community, We invite you to join us on Sunday, November 5th for the annual Pete Frates 5k at Lynch Park,in Beverly MA at 10:00 a.m. Last year, Over $70,000 was raised to support the addition of a psychologist / psychiatric mental-health nurse practitioner to the ALS multidisciplinary care team. This year, all proceeds will benefit…

Les Turner Symposium on ALS

The 2023 Les Turner Symposium on ALS will be held virtually and in-person at Northwestern Memorial Hospital in Chicago on Monday, Nov. 6. The Les Turner Symposium on ALS has featured presentations from leading ALS scientists and clinicians, as well as people living with ALS; plus research posters, a Q&A panel and more. The symposium…

ACT for ALS & ALS Strategic Priorities Community Update

Virtual

n February 2023, the National Institute of Neurological Disorders and Stroke (NINDS), the lead institute for Amyotrophic Lateral Sclerosis (ALS) research within the National Institutes of Health (NIH), completed a strategic planning process to identify the highest priorities for research that will lead to the discovery of effective interventions for the diagnosis, treatment, management, prevention,…

Free

Let’s Talk About It-November

In a few weeks, the world will be in the middle of the season of gratitude, joy and peace. As we enter the season of shopping, cooking and caroling, where does amyotrophic lateral sclerosis (ALS) fit in?   Even during the holidays, individuals and families living with and/or impacted by ALS are forced to deal with…

Free