HEALEY ALS Platform Trial Q&A Webinar
VirtualWeekly Q&A with guest speaker Jackie Whitesell, MD of Saint Alphonsus Medical Center in Idaho
Free
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Tri-State Trek: The Ride to End ALS
ALS TDI 480 Arsenal St #201, Watertown, MA, United StatesJune 24-26, 2022 The traditional annual Tri-State Trek is a fully supported, 3-day, 270-mile route from Boston to Greenwich. It's designed to offer cyclists an unforgettable weekend of athleticism, camaraderie, and dedication to ending ALS. The ride to end ALS. The Tri-State Trek is a 270-mile fully supported bike ride from Boston, MA to Greenwich, CT.…
Free
No Ordinary Campaign (Film and Discussion)
The Aspen Institute 1000 N 3rd St, Aspen, United StatesPresented by Chan Zuckerberg Initiative at the 2022 Aspen Ideas Festival At just 37 years old, Brian and Sandra, who met and fell in love on the 2008 Obama campaign, found their world upended by Brian’s diagnosis of ALS and the possibility that he may have only six months to live. This is a story…
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Free
Why patient centricity is no longer optional in ALS clinical trials
VirtualThis webinar will cover the vital need for patient involvement in ALS clinical trials in order to improve recruitment, retention and data quality, as well as readiness to adhere to impending regulatory changes. Join Paul Wicks, Ph.D., a neuropsychologist, independent consultant and Sano Genetics investor and Cathy Collet, a world-leading ALS advocate, for an important…
Free
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, June 30th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speaker Gale…
Free
Racing for ALS ~ Dave’s Race 4
VIRginia International Raceway 1245 Pine Tree Rd, Alton, VA, United StatesJoin us July 1-2, 2022 on the Full Course at VIRginia International Raceway for Dave's Race 4! To drive, click the Apply to Drive Button to submit your application to participate on May 28, 2022. If accepted, drivers will have the option to pay/fundraise $499 for a one day participant or $779 for a two day participant.…
Walnut 5K Walk/Run for ALS
Walnut, IL 323 S Main St, Walnut, ILALS research fundraising Walnut 5K Run/Walk for ALS Saturday, July 2, 2022 8:00 a.m. 323 S, Main St., Walnut, Illinois Starting line is in front of Bureau Valley Elementary Walnut Campus. Check in at park tent south of the school. All proceeds will be donated to ALS (Lou Gehrig's Disease) research. RACE FEATURES: 3.1 MILES,…
$20
Technology for ALS Living and Voice Banking
VirtualLouisiana native Michael Holoway is a perfect addition to the Team Gleason Technology program. His experience in leadership, management and customer service is incredibly valuable for Team Gleason’s mission, but also critically important to the ALS community. In joining Team Gleason, Michael said, “the ability to bring positive change into people’s lives is the most…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, July 7th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial. In addition, guest speaker James Berry, MD, MPH will join the webinar to discuss…
Free
Racing for ALS ~ Cory’s Race
Willow Springs International Raceway 3500 75th St. W, Rosamond, CA, United StatesJoin us on July 9, 2022 on the Big Willow course at the Willow Springs International Raceway! Apply to Drive Each driver interested in joining Racing for ALS: Cory's Race much first complete the online application. Applications will be reviewed and drivers will be notified to confirm or decline participation in the event. If accepted,…
325.00
SIL Golf Outing to benefit the Les Turner ALS Foundation
Cantigny Golf 27W270 Mack Rd, Wheaton, IL, United StatesWe are excited to announce the 2nd annual SIL Golf Outing benefiting the Les Turner ALS Foundation! Hosted by the Strategic Introduction League (SIL), we are proud to announce that at our inaugural event in 2021, we were able to raise over $3,000 for the Les Turner ALS Foundation. Come show your support this year as…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Free
Complementary and Alternative Therapies for People Living with ALS and Caregivers
VirtualIntegrative holistic therapies can play a major role in helping people feel better, especially when they are dealing with neurologic diseases. This month’s ALS Learning Series, "Complementary and Alternative Therapies for People Living with ALS and Caregivers," taking place on Thursday, July 14 from 12 – 1 p.m. (CT), will discuss how people living with…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualWeekly Q&A with guest speaker Eufrosina Young, MD, Site Investigator at SUNY Upstate
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Free
Canceled ALS at all ages
VirtualTime & Location Jul 20, 4:00 PM Zoom call About the Event EverythingALS is honored to announce our future guest; Leah Stavenhagen, Sunny Brous and Macey Hoaglund, who all have something in common - they were diagnosed with ALS in their late 20’s. They part of Her ALS Story, which is a group of women…
Free
How do we track ALS progression, and why does it matter
VirtualAbout the Event Dr. Christina Fournier is an Associate Professor of Neurology at Emory University. She is the director of the Atlanta VA ALS Clinic, co-director of the Emory ALS Center, and Emory Neuromuscular Division director. Her clinical work is focused on the care of patients with ALS and neuromuscular disorders, and her research interests…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, July 21st at 5:00 pm EST (4:00pm CST/2:00pm PST) for our weekly Q&A webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. In addition, they will be joined by…
Free
Strike Out ALS 5k and 1 Mile Run, Walk & Roll
Guaranteed Rate Field 333 W 35th St, Chicago, IL, United States2022 Strike Out ALS 5k and 1 Mile Run, Walk & Roll We race towards more than a finish line, we race towards a CURE. Join us for this year's Strike Out ALS 5k and 1 Mile Run, Walk & Roll which will be held in-person at Guaranteed Rate Field on Thursday, July 21, 2022.…
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Free
ALS Town Hall: Discussion on Tegoprubart Phase 2a Results
VirtualALS Town Hall: Discussion on Tegoprubart Phase 2a Results Led by Dr. David-Alexandre C. Gros and Dr. Steve Perrin of Eledon Pharmaceuticals Wednesday, July 27, 2022 | 3:00 - 4:00pm EDT On Wednesday, July 27, 2022, ALS TDI will be hosting a new ALS Town Hall discussion on tegoprubart. Tegoprubart is a potential treatment for…
Free
Genes in ALS
VirtualMatthew Harms, MD Associate Professor of Neurology at Columbia University Thursday, July 28, 2022 1:00 - 2:00 PM EDT This webinar will provide an approachable overview of the major genes involved in ALS: what those genes are, how they lead to ALS, and what ideas they are giving scientists for treating all forms of ALS.…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, July 28th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special discussion about placebos with…
Free
Ask Me Anything ALS – Communication Technology
Virtual
Free
NeuroSense Therapeutics Reports Positive Results from Stage III ALS Biomarker Study
VirtualAbout the Event Prior to the establishment of NeuroSense, Alon founded MediCan Consulting, a successful consultancy firm which worked and collaborated with many leading pharmaceutical R&D companies, including Mediwound, Chiasma, Teva, Sol-Gel, FutuRx, NeuroDerm and others. The firm’s diligent employees were pioneers, who paved the way to more efficient and accurate work in the industry,…
Free
Canceled Weekly HEALEY ALS Platform Trial Webinar
Virtual
Free