ALSWarrior Virtual 5K race

Virtual

ALSwarrior Virtual 5K Run August 7, 2021 Join us for our 2nd virtual 5K run to help raise funds for ALS Research at ALS Therapy Development Institute ALS Warriors are helping those with ALS to thrive and live life to the fullest.  This can be for fun or you can compete for fastest time in…

25.00

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…

Free

NORD – Genetic Counseling for Rare and Undiagnosed Conditions

Virtual

Many rare diseases have an underlying genetic cause. Individuals and families living with a rare or undiagnosed disorder or those concerned about the risk of a rare disorder can benefit from meeting with a genetic counselor. Genetic counselors are healthcare professionals with advanced training in medical genetics and counseling who work to help families: Understand…

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

ALS Drug Development Webinar Series Part 5: Preclinical Development of Potential Therapies

Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance of…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

ALS Association Greater Sacramento Chapter Transitions Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…

Free

ALS Learning Series: Managing Speech and Swallowing Problems in ALS

Virtual

About the Program: This webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms, provide helpful tips including tongue and respiratory exercises along with voice banking and communication aid options. Knowing what to expect as your symptoms change can help you make well-informed and timely…

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

Symptomatic and Pre-Symptomatic Biomarkers for ALS Therapy Development

Virtual

EverythingALS is excited for our next speaker on September 8th 4pm PT | 7pm ET! Dr. Michael Benatar from University of Miami will discuss Symptomatic & Pre-symptomatic Biomarkers for ALS Therapy Development. After the presentation, we open up to audience Q&A to answer all your questions, followed by an open forum where you can connect…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…

Free

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…

Free

The Les Turner ALS Foundation™ ALS Walk for Life – 20th Anniversary

Soldier Field 1410 S Museum Campus Drive, Chicago, IL, United States

Join us for the 20th anniversary ALS Walk for Life on September 18,  either at Soldier Field or remotely. People living with ALS need you now more than ever. Saturday, September 18, 2021 Soldier Field in Chicago, IL 9:30am Festivities Begin 11:00am Walk kicks off Register Here

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

Youth Action Week

On September 20-27, 2021—ALS Youth Action Week—kids, teenagers, and young adults will show the world that ALS must be cured. By holding a game competition, hosting an iced tea stand, starting a corn hole tournament, or educating others, you will reveal that ALS is not an incurable disease - it is an underfunded one. Please go…

Free

Young Faces of ALS Happy Hour!

Zoom

Join us 9/21/21 at 5 p.m. ET for our second official Young Faces of ALS Happy Hour call! Grab a drink and come hang out with us! Topic: Young Faces Happy Hour! Time: Sept 21, 2021 05:00 PM Eastern Time To Join: please go to our Facebook Group and request to join to get the…

Free

Clenbuterol for ALS: Findings From an Open Label Trial

Virtual

EverythingALS is excited for our next speaker on September 22nd 4pm PT | 7pm ET! Dr. Richard Bedlack is currently a Professor of Neurology at Duke University, and Director of the Duke ALS Clinic.  He will be discussing the findings from the Open Label Trial:  Clenbuterol for ALS. After the presentation, we open up to…

Free

An Update on AMX0035 and Design of the Phase 3 PHOENIX Study

Virtual

Please join Dr. Merit Cudkowicz and Dr. Sabrina Paganoni for a conversation about recent updates on AMX0035 (sodium phenylbutyrate/taurursodiol) and to review details of the Phase 3 PHOENIX Study (Study A35-004). Register here.

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here

ALS Downtown Las Vegas Scavenger Hunt

Hop Nuts Brewing 1120 S Main St #150, Las Vegas, NV, United States

**21+ only event** Join us for a day of FUNdraising. Register as an individual or as a whole team. Max number of people on a team is 4. Don’t have a team? We will put you on one at registration. Make new friends while getting to explore Brewery Row, The Arts District, and more! Registration…

40.00

ALS Association Greater Sacramento Chapter Transitions Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…

Free

ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology

Virtual

This webinar will identify solutions for communication and use of smart phones, tablets, and computers as ALS can affect your speech and ability to use these devices. This course will focus on making communication as easy as possible throughout this difficult journey, using cutting-edge technology and collaboration with each person’s team including their family, caregivers, therapists,…

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here