Chicagoland Area Support Group
VirtualTime: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Time: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Dr. James Berry (primary investigator) will review the importance of biomarkers and the REFINE-ALS study, provide a study status update, discuss recent changes to the study, including the option for remote study visits. We hope you will join us to learn more about REFINE-ALS and how to get involved.
I AM ALS is pleased to host a forum for industry and advocates on Expanded Access featuring Alison Bateman-House, PhD, MPH, MA, Assistant Professor at NYU Grossman School of Medicine and co-chair of the Working Group on Compassionate Use and Preapproval Access (CUPA). The event will take place on Tuesday, May 18, at 4 pm…
Hear from Dr. Suma Babu about clinical trials actively recruiting at MGH and other sites throughout the country and meet the MGH Research Access Nurse, Judith Carey, who will talk to you about where to get started with research. Also, learn from Nadia Sethi about resources available to the community to find the right trial…
In our May webinar, Dr. Coleman will be discussing respiratory support in ALS including non-invasive and invasive ventilation. About the Presenter: John M. Coleman III, MD. Associate Professor of Medicine and Neurology, Northwestern Medicine. Thu, May 20, 2021 12:00 AM - 1:00 PM CDT Register Here
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
SAVE THE DATE! Don’t Talk-a-Thon: Saturday, May 22nd, time TBD, virtual
Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
In the ALS Town Hall: A Research Discussion with ALS TDI's New CEO, our CEO and Chief Scientific Officer, Fernando Vieira M.D., will lead a research-focused conversation with the ALS community. Dr. Vieira will discuss ALS research, the current research at ALS TDI, and ALS TDI’s critical role in developing effective treatments for ALS. Any good discussion…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
At Major League Baseball parks throughout the US. Be there or be square.
Major League Baseball is officially honoring Lou Gehrig Day at ballparks across the country on June 2 and 3. To commemorate the occasion, please join us for a very special discussion on Wednesday, June 2 from 12:00 PM - 1:00 PM CDT with two longtime friends of the Les Turner ALS Foundation: Jonathan Eig, acclaimed…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
The ALS Hope Foundation is pleased to present the 3rd Annual Run for Hope 5K for ALS! It's been quite the year but we are so excited to be planning a hybrid event that combines virtual and in-person experiences so everyone will be comfortable and safe. There will be an in person timed 5K Run…
Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital) will review the ALS clinical trial pipeline and answers questions about the current state of clinical research.
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
This is the 11th annual 3-day tour, charity cycling event held in the beautiful San Juan mountains of Southern Colorado. It is the ONLY charity cycling event to support ALS research and greater awareness. You will ride a very challenging 235 mile course over 5 mountain passes and 17,000 feet of climbing. Not anymore challenging…
First Annual Queen B Golf Outing Thursday, June 10, 2021 Itasca Country Club | 400 E Orchard St, Itasca, Illinois 60143 Learn more: https://alongswim.org/event/first-annual-queen-b-golf-outing-itasca-country-club/ Register: https://www.eventbrite.com/e/first-annual-queen-b-golf-outing-tickets-148506249189 Sponsorship: https://secureservercdn.net/50.62.174.113/36w.fcb.myftpupload.com/wp-content/uploads/2021/03/Queen-B-Golf-Outing-2021-Sponsorship-Packet-No-Letter.pdf
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…