Please join us on Thursday, April 29th at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD will present this week’s updates on the HEALEY ALS Platform Trial with guest speaker Eduardo Locatelli, MD, MPH, from Holy Cross Hospital and answer questions from the audience. Click here to register! If you have…
ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS Biorepository is housed at the Healey Center for ALS at Mass General Hospital and Barrow Neurological Institute and overseen by the NEALS Biorepository Committee. Samples and data…
Join us for the third installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Meets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Join us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living, ALS research updates, drug development roundtable discussion, and much more. There is no cost to members of the MDA community or healthcare providers to attend the event,…
Join us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living, ALS research updates, drug development roundtable discussion, and much more. There is no cost to members of the MDA community or healthcare providers to attend the event,…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Join us for the fourth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance…
The panel will discuss the importance of Cortical Hyperexcitation in ALS research. Speakers: Dr. Hande Ozdinler, PhD, A Long Swim Director of Science, and Steve Vucic, PhD, DSc, FRACP, FAHMS, senior staff specialist in neurology at Westmead Hospital, clinical academic and translational researcher at the University of Sydney.
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Please join us for a conversation about the results of this trial and the next steps for AMX0035. Register now!
Time: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Dr. James Berry (primary investigator) will review the importance of biomarkers and the REFINE-ALS study, provide a study status update, discuss recent changes to the study, including the option for remote study visits. We hope you will join us to learn more about REFINE-ALS and how to get involved.
I AM ALS is pleased to host a forum for industry and advocates on Expanded Access featuring Alison Bateman-House, PhD, MPH, MA, Assistant Professor at NYU Grossman School of Medicine and co-chair of the Working Group on Compassionate Use and Preapproval Access (CUPA). The event will take place on Tuesday, May 18, at 4 pm…
Hear from Dr. Suma Babu about clinical trials actively recruiting at MGH and other sites throughout the country and meet the MGH Research Access Nurse, Judith Carey, who will talk to you about where to get started with research. Also, learn from Nadia Sethi about resources available to the community to find the right trial…
In our May webinar, Dr. Coleman will be discussing respiratory support in ALS including non-invasive and invasive ventilation. About the Presenter: John M. Coleman III, MD. Associate Professor of Medicine and Neurology, Northwestern Medicine. Thu, May 20, 2021 12:00 AM - 1:00 PM CDT Register Here
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
SAVE THE DATE! Don’t Talk-a-Thon: Saturday, May 22nd, time TBD, virtual
Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
In the ALS Town Hall: A Research Discussion with ALS TDI's New CEO, our CEO and Chief Scientific Officer, Fernando Vieira M.D., will lead a research-focused conversation with the ALS community. Dr. Vieira will discuss ALS research, the current research at ALS TDI, and ALS TDI’s critical role in developing effective treatments for ALS. Any good discussion…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…