I AM ALS Digital Social Hour!
VirtualFor details -- https://iamals.org/action/join-the-i-am-als-social-hour/
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ALS Drug Development Webinar Series Part 1: Scientific Considerations
VirtualAnnouncing a new NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, the clinical trial site level overview, and the importance of patient engagement. In this installment of…
Free
Les Turner ALS Learning Series: Grief and Loss in Children and Youth in Families Living with ALS
VirtualOur March webinar focused on talking with children about ALS. In April, we shift the discussion to how children cope with grief and loss. This webinar integrates Dr. Kavanaugh’s clinical expertise and many years of research with children and youth in families with neurological disorders, to guide families in starting the conversation about death and…
ALS Drug Development Webinar Series Part 2: Regulatory Considerations
VirtualJoin us for the second installment of the NEALS webinar series on ALS drug development moderated by Dr. Jinsy Andrews from Columbia University. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, the clinical trial site level overview, and the importance of patient engagement. In…
Free
Barrington Support Group
Journey Care Hospice – Pepper Family House, 405 Lake Zurich Road, Barrington, IL, 60010, United StatesMeets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Free
Chicagoland Area Support Group
VirtualTime: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
EverythingALS webinar Assistive Technology for Communication, A Spectrum of Options
VirtualThis is bimonthly event
Project ALS Hosts: Women & The Brain
VirtualSAVE THE DATE Women & The Brain: Thursday, April 22nd, time TBD
Wheaton Support Group
Marianjoy Rehab Center, 26 W 171 Roosevelt Road, Wheaton, IL, 60187, United StatesMeets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, April 29th at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD will present this week’s updates on the HEALEY ALS Platform Trial with guest speaker Eduardo Locatelli, MD, MPH, from Holy Cross Hospital and answer questions from the audience. Click here to register! If you have…
Maximizing Repositories to Accelerate ALS Research: Biofluids, Tissues, Cells and Data
ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS Biorepository is housed at the Healey Center for ALS at Mass General Hospital and Barrow Neurological Institute and overseen by the NEALS Biorepository Committee. Samples and data…
Free
Celebrate Becca – North America (Eastern)
Virtual
20
Celebrate Becca – North America (Pacific)
Virtual
20
ALS Drug Development Webinar Series Part 3: Ethical Considerations
VirtualJoin us for the third installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Rooney Family Memorial Support Group – Far South Side
Saint Xavier University, Shannon Center 2nd floor conference room, Saint Xavier University, Shannon Center 2nd floor conference room, Chicago, IL, 60655, United StatesMeets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Barrington Support Group
Journey Care Hospice – Pepper Family House, 405 Lake Zurich Road, Barrington, IL, 60010, United StatesMeets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Free
MDA Engage ALS Virtual Symposium
VirtualJoin us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living, ALS research updates, drug development roundtable discussion, and much more. There is no cost to members of the MDA community or healthcare providers to attend the event,…
MDA Engage ALS Virtual Symposium
VirtualJoin us for this MDA Engage ALS Virtual Symposium from 3:00-6:00pm ET where we discuss content such as best practices in clinical care, genetics, tips for daily living, ALS research updates, drug development roundtable discussion, and much more. There is no cost to members of the MDA community or healthcare providers to attend the event,…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu