Santa Barbara ALS Online Support Group
VirtualSanta Barbara ALS Support Group Facilitator: Fran Finney, 805-259-8473 ffinney@alsagoldenwest.org ***Call Fran for Info on New Online Meeting!***
Santa Barbara ALS Support Group Facilitator: Fran Finney, 805-259-8473 ffinney@alsagoldenwest.org ***Call Fran for Info on New Online Meeting!***
Become an ALS Research Ambassador Join our first-ever 2021 Chicago Virtual NEALS ALS Clinical Research Learning Institute (CRLI) online on February 20-21! The ALS CRLI is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Certification as an ALS…
Join our first-ever 2021 Chicago Virtual NEALS ALS Clinical Research Learning Institute (CRLI). This program will take place online on February 20-21. Patients, caregivers, and surviving family members are encouraged to apply. The ALS CRLI is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Contact Dawn for information on how to join virtually using Zoom! Facilitator: Dawn White, MPH,CMC,CCP, 925-324-5961, dwhite@alsagoldenwest.org
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin…
Mitsubishi Tanabe Pharma America will be conducting an educational webinar designed to answer some of the most commonly asked questions about RADICAVA® (edaravone). It is titled Understanding the Insurance Process for RADICAVA® (edaravone) and will be presented on February 22, 2021, at 3pm ET by James T. Kenney, a former president of the Academy of…
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
Contact Kathleen for information on how to join online using Zoom! Facilitator: Kathleen Kelsey, RCP 818-292-4315 or Kkelsey@alsagoldenwest.org
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
BrainGate: Brain-Computer Interfaces Toward the Maintenance and Restoration of Communication and Mobility Leigh R. Hochberg, M.D., Ph.D. Director, Center for Neurotechnology and Neurorecovery, Department of Neurology, Massachusetts General Hospital, Harvard Medical School Professor of Engineering, Brown University Director, VA RR&D Center for Neurorestoration and Neurotechnology, Providence VAMC Wednesday, February 24, 2021 12:00…
EverythingALS's next webinar on Feb 24th 4pm PDT featuring Dr. Paul Alan Cox, Executive Director of the Brain Chemistry Labs, which focuses on discovering cures for ALS and other neurodegenerative diseases with two drugs in FDA clinical trials. Dr. Cox is featured in "Toxic Puzzle" a medical and environmental detective story about the worldwide search…
I AM ALS is here to drive change. It’s part of our ethos to revolutionize how to cure disease, with our sights set on ALS. We believe the best way to do this is providing those directly impacted the opportunity to drive progress. Progress in our eyes, however, has not been made to ensure we’re doing…
ALS TDI will be hosting Virtual Community Trivia Wednesday, February 24, 2021, at 8:30 p.m. EST! We invite you to test your trivia knowledge by being a part of this interactive community event. This special trivia night will be hosted by Erin Stevens, one of the incredible Development Directors at the ALS Therapy Development Institute (ALS TDI). Trivia is open to…
Coping with the Loss of a Loved One During COVID-19, with Nicole Sammartino, MS, & Easton Stevenson, LCSW Coping with the loss of a loved one is hard. It’s especially challenging during a global pandemic. Over the past 44 years, we have made it a priority at the Les Turner ALS Foundation to honor people…
Join us for a HEALEY ALS Platform Trial Webinar, "Zilucoplan, Mechanism of Action and Science" with representatives from RA Pharma, who will discuss Zilucoplan, which is Regimen A in the HEALEY ALS Platform Trial. REGISTER HERE
Join us (virtually!) next Thursday, February 25th, at 7pm ET for an evening of trivia! You and up to 7 friends (or kids, neighbors, your boss, etc.) can create a team, compete for prizes, and show off your pop culture prowess -- all while raising critical funds for Project ALS research. Register Here!
The Penn FTD Center will be hosting a virtual conference, Fighting for the Future: Education and Support for Familial FTD/ALS, on Saturday, February 27, 2021 from 9AM-12PM EST. The team at the Penn FTD Center understands that ALS and FTD can impact the entire family even when just one person is diagnosed. However, we also…
Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
TOPIC: Journaling for Inner Healing Join us for a journaling session. Can’t make it? Complete the linked journaling prompts at your leisure and let us know how it went! Caregiver Club is a bi-monthly virtual meetup of caregivers of people living with ALS (CALS) offered to our community free of charge. The purpose of this…
Berkeley - Loved Ones Support Group Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
Contact Facilitator Dawn White, MPH,CMC,CCP, for information on how to participate: 925-324-5961 dwhite@alsagoldenwest.org
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…