HEALEY ALS Platform Trial Q&A
VirtualJoin us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
My ALS Communication Passport to Quality Care is a tool for individuals living with ALS and their families. The 12-page Passport document, which is available in hard copy and online, helps nursing, medical staff and caregivers better understand the care needs and preferences of people living with ALS. For the person diagnosed with ALS, this…
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
Berkeley - Loved Ones Support Group Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsagoldenwest.org Contact Kim for information on joining the group via Zoom!
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
Contact Facilitator Dawn White, MPH,CMC,CCP, for information on how to participate: 925-324-5961 dwhite@alsagoldenwest.org
On February 4th, we invite you to join special guest and ALS research advocate Ben Stiller, foremost ALS clinicians, leading researchers, and dedicated patient advocates to learn how Jaci and Alex Hermstad inspired the team effort that led to the development of jacifusen - a novel gene therapy for ALS. Those familiar with rare disease know…
Join us for a HEALEY ALS Platform Trial Webinar, "CNM-Au8, Mechanism of Action and Science" with representatives from Clene Nanomedicine, who will discuss CNM-Au8, which is Regimen C in the HEALEY ALS Platform Trial. REGISTER HERE
Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
A different kind of advocacy conference and Hill Day! Tuesday, February 9, 2021 - A day of idea-sharing and brainstorming. Wednesday, February 10, 2021 - Your Hill Day to talk about issues that are important to you. Everyone is welcome. Seating is limited. Online access will be available. Online registration will open late in 2020.
There will be virtual access to this different kind of advocacy gathering. Online registration will open before the end of 2020.
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Contact Care Manager Robin Eller for information on how to participate using Zoom! 661-364-1913; reller@alsagoldenwest.org
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/
San Fernando Valley Online Support Group Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Santa Rosa - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Turlock Online Support Group Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsagoldenwest.org; 818-292-4315
At this event, you will hear from the BrainGate team about the research and opportunities underway related to using brain-computer interface technology to restore communication and mobility.
Corte Madera - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
All Chapter Trach and Vent Online Support Group **NEW** via Zoom! Contact Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org for information on how to participate!
Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Meets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
Time: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
An online support group specifically for those with a Familial ALS diagnosis Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT: cmarks@alsagoldenwest.org; 909-736-5677
For details -- https://iamals.org/action/join-the-i-am-als-social-hour/