30 events found.
I AM ALS Town Hall with BrainStorm Cell Therapeutics
I AM ALS will be hosting a town hall with BrainStorm Cell Therapeutics on Tuesday (11/7) at 1pm ET. This town hall is an opportunity for you to hear directly from BrainStorm about next steps, clarify any questions or uncertainty about their process with the FDA, and learn about the path forward for NurOwn. In order…
Free
No Ordinary Campaign Screening
Reel Abilities Film Festival Date: Wednesday November 8, 2023 Time: 11:00AM– 1:00PM Location: Pope Lecture Hall, 2641 John F. Kennedy Blvd, Jersey City, NJ 07306 This film, “No Ordinary Campaign” focuses on one couple’s fight to reclaim their future after an ALS diagnosis became a movement for millions of patients seeking to find their voice in…
Caregiver to Caregiver
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
Weekly HEALEY ALS Platform Trial Webinar
VirtualHeading into the new year, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, November 9th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs with our guest host, Dr. Suma Babu of Massachusetts General…
Free
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
No Ordinary Campaign Screening
No Ordinary Campaign at Alexandria VA Film Festival Brian Wallach was diagnosed with ALS at 37. He and his wife’s fight to reclaim their future from a brutal disease has snowballed into a movement with resounding ramifications not only for the ALS community, but for millions of patients seeking to find their voice in our…
Neuroscience 2023
Join Us in Washington, D.C.! Neuroscience 2023 will be held at the Walter E. Washington Convention Center in Washington, D.C., November 11-15, 2023. Each year, scientists from around the world congregate to discover new ideas, share their research, and experience the best the field has to offer. Attend so you can: present research, network with…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Free
Podcasting Panel
ZoomOne of the prominent threads present in the ALS community is the power of storytelling. Storytelling is cathartic. It evokes empathy, builds connection, and makes people feel less alone. It has the potential to help us simultaneously step outside of ourselves and look inward. Storytelling comes in many mediums, from more formal books and essays…
Free
ALS ONE Research Symposium
This year's event will be held on November 16th & 17th and, as we did at our symposium last year, we are thrilled to feature a full day dedicated to neurotechnology on Monday, November 20th. Stay tuned for details and how to submit an abstract for consideration. In the meantime, please save the date for…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Free
Men of ALS
2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
Caregivers-Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
Women of ALS
3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
Weekly HEALEY ALS Platform Trial Webinar
VirtualSpecial Topic: Regimen G Drug Science Curious about the science behind Regimen G of the HEALEY ALS Platform Trial? Join us for our weekly webinar on Thursday, November 16th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) where scientists from Denali Therapeutics will provide an overview about DNL343 and answer your questions. Dr. Sabrina Paganoni of…
Free
Go On Be Brave Screening: Philadelphia ,PA
Location: Landmark Ritz Five Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Caregiver Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
ALSA Greater Chicago Support Group
Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Free
ALS ONE Neurotechnology Research Symposium
Save the date for our 6th Annual ALS ONE Research Symposium! This year's event will be held on November 16th & 17th and, as we did at our symposium last year, we are thrilled to feature a full day dedicated to neurotechnology on Monday, November 20th. Stay tuned for details and how to submit an…
Free
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link to sign up.
Free
Chicagoland Support Group
VirtualMeets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
Beyond ALS
6:30pm ET Join a welcoming group of men and women who have lost a loved one to ALS. Share openly with others who are rebuilding their lives after profound loss. This interactive gathering will highlight where we are now and what may feel different: our identity, our values, our approach to spirituality, and more. We…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link to sign up.
Free
Living After Loss (Bereavement Group)
VirtualAn open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will…