Location: Midtown Art Cinema Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Midtown Art Cinema Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
Cary Theater Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Hello friends of CUPA, We are excited to announce our upcoming FREE webinar, "Expanded Access Policies and Compliance in an Ever-Changing Environment" taking place on Friday, October 20th from 12-1pm ET via Zoom. This moderated panel will bring together experts from the fields of law, bioethics, patient advocacy, business strategy, and the biopharmaceutical industry to discuss the intent of and compliance with US regulations about expanded…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
On Saturday, Oct. 21, we invite you to join us for a meaningful event that honors the memory of those we have lost to ALS. Led by Support Group Facilitator Anne Lidsky, PhD, this annual Celebration of Life will be a touching tribute. Event Details: Date: Saturday, Oct. 21 Time: 10:00 AM - 11:30 AM…
Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Saturday October 21st 2023 • 11:00 am DuxPlex Athletic Complex, 50 Railroad Avenue, Duxbury, MA
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will…
Dear MGH-ALS Community, Darlene Sawicki and Sarah Luppino, Nurse Practitioners at the MGH ALS Multidisciplinary Clinic, will share what they learned at the NEALS 2023 conference with the ALS community. Please join us for this webinar on Wednesday, October 25th at 2 pm ET. Best, Your ALS Team at the Healey & AMG Center at Mass…
***If you’ve signed up already in 2023, there’s no need to do it again. You will be added to the calendar invite.*** It may be spooky season, but everything feels less spooky when you’re among friends. Join us for Social Hour on October 24th from 4-5 PM ET to spend time with your fellow advocates. For…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Location: Boston Museum of Science, Mugar Omni Theater - IMAX Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states.…
Title: Ethical Principles & Informed Consent in Research Date/Time: Thursday, October 26th, 2023 at noon CST Discover the crucial role of informed consent in research at our October ALS Learning Series. Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine, will unravel the history of informed consent, guide you…
ALS TDI OPEN HOUSE Thursday, October 26, 2023 | 4pm-6pm ALS TDI research lab 480 Arsenal Street, Suite 201, Watertown, MA 02472 The weekend will kick-off with the ALS TDI Open House at the ALS TDI research lab in Watertown, MA. Here, community members can enjoy light appetizers and cocktails while exploring our state-of-the-art lab…
6:30pm ET Join a welcoming group of men and women who have lost a loved one to ALS. Share openly with others who are rebuilding their lives after profound loss. This interactive gathering will highlight where we are now and what may feel different: our identity, our values, our approach to spirituality, and more. We…
Location: Landmark Kendall Square Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
ALS TDI Summit 2023 A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 Boston Sheraton Hotel 39 Dalton St, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is…
A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 | 10am Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
GO ON, BE BRAVE SCREENING, Meet Andrea Lytle Peet Friday, October 27, 2023 | 7:30pm Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 After the ALS TDI Summit
ALS TDI cordially invites you to the Saturday, October 28, 2023 | 6pm Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the…
