The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
We will discuss warning signs, how to safeguard, get help, and maintain mental health in people living with ALS/MND and caregivers.
On September 27, 2023, join ALS community members watching the U.S. Food and Drug Administration’s (FDA) AdComm on BrainStorm’s NurOwn. Sign up by filling out this form. Now what’s an AdComm? Good question. AdComm is short for Advisory Committee. These are panels of outside experts that provide advice to FDA, which can be made up…
September 28 2:00pm ET Enjoy the connection and unique perspective of other Veterans living with ALS. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS journey. The Veterans gatherings create a safe space to support and be supported without judgement and cultivate…
***If you've signed up already in 2023, there's no need to do it again. You will be added to the calendar invite.*** The seasons may change, but Social Hour remains! Join us on September 28th from 3-4 PM ET to spend time with your fellow advocates. For those who may not know, social hour is…
Please join us on Thursday, September 28th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, Dr. Paganoni will also present updates on the EAP…
Location: College of Charleston Sottile Theatre, Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt at the impossible - to be the first person with ALS to complete a marathon in all 50 states. Trailer
6:30pm ET Join a welcoming group of men and women who have lost a loved one to ALS. Share openly with others who are rebuilding their lives after profound loss. This interactive gathering will highlight where we are now and what may feel different: our identity, our values, our approach to spirituality, and more. We…
On September 18th, September 29th, and October 10th, from 10:30 AM – 5:30 PM ET, NIH will be hosting a virtual workshop series: “Advancing Endpoints and Digital Health Technologies for Neurological and Neuromuscular Disorders.” The registration information and draft agenda can be found here: https://advancingdigitalendpoints.com/agenda/. Background: Digital endpoints are expected to revolutionize clinical trials by enabling…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
It's fifteen years since we started the Brigance Brigade Foundation which has helped hundreds of ALS patients and their caregivers. Equip. Encourage. Empower. That's our motto, and it's one that we hope to continue with well into the future. Since this is a landmark year, we've gone all out to make sure it's a memorable experience. There'll…
“Writing is a form of therapy. Sometimes I wonder how all those who do not write, compose, or paint can manage to escape the madness, melancholia, the panic and fear which is inherent in a human situation.” -Graham Greene I AM ALS’ Write Stuff team requests your presence at their first Literary Salon, held on…
2023 Annual NEALS Meeting The 22nd Annual NEALS Meeting will be held October 4 - 6, 2023. Please check back in late Spring for additional details, including information on virtual options.
BIO Patient Advocacy Coffee Chat The Future of Cures... and Coverage: Cell and Gene Therapies Wednesday, October 4, 2023 2:00 pm - 3:00 pm ET Please join us for a chat about the science behind gene and cell therapies, and the challenges patients face in accessing these therapies. The recently proposed CMS MDRP rule presents serious concerns around…
We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are excited to host EverythingALS Community Event: Non- Invasive Treatment of ALS Using Motor Neuron Hyperexcitability Suppression - Nader Yaghoubi MD , PhD Wednesday, October 4th, 4:00 PM Pacific Standard Time…
Location: Governors State University Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register
Location: Grace Lutheran Glen Ellyn Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Location: ShowPlace ICON Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Location: Governors State University Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Location: BUFFALO INTERNATIONAL FILM FESTIVAL North Park Theater ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Steve Madden Presents His 3rd Annual Fall Cobbler Classic Pro-Am Golf Tournament and Charity Fundraiser for I AM ALS Join Steve and friends at beautiful Engineers Country Club in Roslyn, NY for a day of fun and food for a great cause. A buffet breakfast will start the day at 11 am, shotgun start for…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
Location: Our Town Cinemas Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
HEARTLAND INTERNATIONAL FILM FESTIVAL Location: Glendale Landmark Theater 10 Meet the Filmmakers ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
