HEALEY ALS Platform Trial Q&A

Virtual

Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05

Champions for Cures and Care

Virtual

The Golden West Chapter of The ALS Association invites you to Save the Date for CHAMPIONS FOR CURES AND CARE Join us virtually on Thursday, November 19, at 5:30 pm PST, for an inspirational evening to celebrate the ALS community and recognize extraordinary individuals and organizations whose heroic efforts are accelerating the search for effective treatments and…

Murrieta/Palm Springs Online Support Group

Virtual

Murrieta/Palm Springs Online Support Group Contact Mika for information on how to Participate using Zoom!! Facilitator: Mika Flanngan, MSW 951-534-6638, mflanngan@alsagoldenwest.org

Carson Online Support Group

Virtual

Carson Support Group - Now Meeting Online using Zoom! Contact Brandon for information on how to participate! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsagoldenwest.org

Santa Barbara ALS Online Support Group

Virtual

Santa Barbara ALS Support Group Facilitator: Fran Finney, 805-259-8473 ffinney@alsagoldenwest.org ***Call Fran for Info on New Online Meeting!***

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

ALS Association Greater Sacramento Chapter Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…

Free

Walnut Creek/East Bay – ALS Online Support Group

Virtual

Walnut Creek/East Bay - ALS Support Group Contact Dawn for information on how to join virtually using Zoom! Facilitator: Dawn White, MPH,CMC,CCP, 925-324-5961, dwhite@alsagoldenwest.org

Glendale Online Support Group

Virtual

Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org

John Gill Central Coast ALS Online Support Group

Virtual

JOHN GILL CENTRAL COAST - ALS SUPPORT GROUP 2:00 - 4:00 PM Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsagoldenwest.org

Veteran’s ALS Online Support Group *NEW*

Virtual

Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin…

Ventura County ALS Online Support Group

Virtual

Contact Barbara for information on how to join online using Zoom! Facilitator: Barbara Porush, MA, MFT 805-222-3012 or bporush@alsagoldenwest.org

ALS Association Greater Sacramento Chapter Transitions Support Group Meetings

Virtual

The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…

Free

San Luis Obispo – ALS Online Support Group

Virtual

San Luis Obispo - ALS Online Support Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org

Bakersfield/Fresno ALS Online Support Group

Virtual

Bakersfield/Fresno ALS Online upport Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org

All-Hawaii Support Group

Virtual

All-Hawaii Support Group Please contact Regional Care Manager Terryn Davis for information on how to participate via Zoom! tdavis@alsagoldenwest.org; 808-597-6416

Pomona Online Support Group

Virtual

Pomona Online Support Group Call Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsagoldenwest.org

Palo Alto – ALS Online Support Group

Virtual

Palo Alto – ALS Online Support Group Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsagoldenwest.org

Wheaton Support Group

Marianjoy Rehab Center 26 W Roosevelt Rd, Wheaton, IL, United States

Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

EverythingALS Webinar: BioMarkers in ALS

Virtual

Please connect with us for a time of collaboration and learning! The next EverythingALS Patient Community Zoom Meeting will occur Wednesday, December 2nd at 4:00 pm PST. We encourage you to participate in this call hosted by Dr. Robert Bowser, Ph.D. to discuss his pioneering research into the discovery and validation of biomarkers for ALS. BioMarkers in…

Engaging Diverse Patient Populations in Rare Genetic Disease Clinical Research

Virtual

When targeting rare genetic diseases for clinical trials or research, patient engagement is critical. In this webinar, join a panel of experts who will address proven and emerging ways to empower a diverse group of patients as critical stakeholders in clinical trials, leading to improved participation and more meaningful outcomes.

Free

HEALEY ALS Platform Trial Q&A

Virtual

Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05

Rooney Family Memorial Support Group – Far South Side

Saint Xavier University 801 W University Ln, Chicago, IL, United States

Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN and Easton Stevenson, LCSW RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

2020 Virtual ALS TDI Summit

Virtual

In an effort to keep our community safe, we have decided to make the 2020 ALS TDI Summit a virtual event. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective treatments for ALS. Led…