HEALEY ALS Platform Trial Q&A
VirtualJoin us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
The Golden West Chapter of The ALS Association invites you to Save the Date for CHAMPIONS FOR CURES AND CARE Join us virtually on Thursday, November 19, at 5:30 pm PST, for an inspirational evening to celebrate the ALS community and recognize extraordinary individuals and organizations whose heroic efforts are accelerating the search for effective treatments and…
Murrieta/Palm Springs Online Support Group Contact Mika for information on how to Participate using Zoom!! Facilitator: Mika Flanngan, MSW 951-534-6638, mflanngan@alsagoldenwest.org
Carson Support Group - Now Meeting Online using Zoom! Contact Brandon for information on how to participate! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsagoldenwest.org
Santa Barbara ALS Support Group Facilitator: Fran Finney, 805-259-8473 ffinney@alsagoldenwest.org ***Call Fran for Info on New Online Meeting!***
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Walnut Creek/East Bay - ALS Support Group Contact Dawn for information on how to join virtually using Zoom! Facilitator: Dawn White, MPH,CMC,CCP, 925-324-5961, dwhite@alsagoldenwest.org
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
JOHN GILL CENTRAL COAST - ALS SUPPORT GROUP 2:00 - 4:00 PM Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsagoldenwest.org
San Francisco/San Mateo County Weekly Online Huddle with Taheerah - **NEW** Contact: Taheerah Mujahid @ 510-695-2676 or tmujahid@alsagoldenwest.org for more information!
Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin…
Contact Barbara for information on how to join online using Zoom! Facilitator: Barbara Porush, MA, MFT 805-222-3012 or bporush@alsagoldenwest.org
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
San Luis Obispo - ALS Online Support Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org
Bakersfield/Fresno ALS Online upport Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org
All-Hawaii Support Group Please contact Regional Care Manager Terryn Davis for information on how to participate via Zoom! tdavis@alsagoldenwest.org; 808-597-6416
Pomona Online Support Group Call Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsagoldenwest.org
Palo Alto – ALS Online Support Group Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsagoldenwest.org
SAN FRANCISCO COUNTY ALS SUPPORT GROUP 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Taheerah Mujahid, 510-695-2797; tmujahid@alsagoldenwest.org
Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
San Francisco/San Mateo County Weekly Online Huddle with Taheerah - **NEW** Contact: Taheerah Mujahid @ 510-695-2676 or tmujahid@alsagoldenwest.org for more information!
Please join us for an update on the Platform Trial from Dr. Cudkowicz and Dr. Paganoni with remarks from Jen DiMartino of ALS One. Click here to register!
Please connect with us for a time of collaboration and learning! The next EverythingALS Patient Community Zoom Meeting will occur Wednesday, December 2nd at 4:00 pm PST. We encourage you to participate in this call hosted by Dr. Robert Bowser, Ph.D. to discuss his pioneering research into the discovery and validation of biomarkers for ALS. BioMarkers in…
When targeting rare genetic diseases for clinical trials or research, patient engagement is critical. In this webinar, join a panel of experts who will address proven and emerging ways to empower a diverse group of patients as critical stakeholders in clinical trials, leading to improved participation and more meaningful outcomes.
Join us for a HEALEY ALS Platform Trial Q&A Our investigators and study team will be available to answer any and all questions that the you might have about the trial. https://t.co/M1rpdzRw05
Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN and Easton Stevenson, LCSW RSVP: Please email us at supportgroup@lesturnerals.org to RSVP
In an effort to keep our community safe, we have decided to make the 2020 ALS TDI Summit a virtual event. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective treatments for ALS. Led…