Join A Long Swim on Monday, October 18, 2021, at 7:00 pm CST for an intimate talk with the recipient of the Ellen McConnell Blakeman ALS Research Fellowship at Northwestern…
Join this Hospice and Palliative Care webinar to learn how to talk with your loved ones about ALS end-of-life care, what to say, and most importantly, when to say it.…
Please join us to learn about COURAGE-ALS, a global phase 3 trial of reldesemtiv currently enrolling participants.
During this webinar, you will learn how to use the new My ALS Decision Tool™. This groundbreaking decision tool is a web-based, interactive series of questions and considerations which can…
During this webinar, the presenters will be discussing symptoms of mobility weakness and how ALS affects mobility. You will learn about a variety of mobility aids to assist you in…
Please join us on February 24th for a webinar to learn about a new Phase 2a trial of Oral LAM-002A capsules for individuals with C9ORF72 positive ALS.
Zoom Meeting: https://us02web.zoom.us/j/9696329782 Password: 0316 We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are…
Making Activities of Daily Life Easier in ALS - Thursday, March 17, 2022 from Noon to 1:00pm CT About the Program: This webinar will focus on how ALS may impact your…
The purpose of this webinar is to provide an overview of the ATLAS study, the investigational drug, eligibility criteria, and what study participation involves. This webinar will also share resources…
Please join us on Thursday, March 17th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to the study team at the University…
Please join us for a conversation about Expanded Access Protocols (EAPs) in ALS, including recent progress in setting EAPs up alongside clinical trials. This webinar will be moderated by Dr.…
Guest speaker Jaimin Shah, MD of the Mayo Clinic Jacksonville Jaimin Shah, M.D. is a physician in the Department of Neurology at Mayo Clinic in Jacksonville, Florida. His clinical interests focus…
We are excited to host EverythingALS Community Event: Antisense Oligonucleotide Therapy for ALS. We invite you to join us and other people with ALS and families to engage in a…
Please join us on Thursday, March 31st at 5:00 pm EST (4:00pm CST/2:00pm PST) for our weekly Q&A webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD,…
Event by Michelle Lorenz and No More Excuses! ALS Watch Dog Group Join April 4th at 7 pm ET, 4 pm PT The AACT for ALS was signed into law in by President…
We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. The meeting will be on Wednesday,…
Overview Rare diseases pose unique challenges to the health care system. Unlike common diseases that affect millions, such as type 2 diabetes, a rare disease may have only 50 patients…
Please join us on Thursday, April 14th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kuldip Dave Ph.D. vice president…
ALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS Thursday, April 21, 2022 | 3:00pm - 4:30pm ET Recently, ALS TDI and Google introduced new groundbreaking digital tools that are able…
We are excited to host EverythingALS Community Event: Augmentative communications program for ALS. We invite you to join us and other people with ALS and families to engage in a…
Thursday, April 28, 2022 from Noon to 1:00pm CT About the Program: Are you a veteran living with ALS? Need help navigating the Veterans Administration system and don’t know where…
Please join us on Thursday, April 28th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Kelly G. Gwathmey M.D., site…
The various pathways of preapproval access are confusing, and often misunderstood. CUPA will help bring clarity to this complex topic. About this event Most people access unapproved medical products…
Register to Attend a Community Discussion on ALS Research and Trials Next Tuesday, May 3rd, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development…
Please join us on Thursday, May 5th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Peter Foss, president of…
A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD (Amyotrophic Lateral Sclerosis and/or Frontotemporal Dementia) Merit Cudkowicz, MD, MSc Sean M. Healey & AMG Center for ALS at…
About the Event Michael Snyder, Ph.D. Title: Moving from a few genes to a genetic architecture for ALS and the insights it provides Michael Snyder, Ph.D., Professor in Genetics Stanford…
About the Program: This webinar will guide people living with ALS and their loved ones through easy-to-understand actionable steps for securing a financial future and optimizing health care. A diagnosis…