Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Join Dr. Terry Heiman-Patterson, Dr. Sabrina Paganoni, and Dr. Kelly Gwathmey's discussion of the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that quality care at Multidisciplinary Centers is maintained and access to care and trials is increased.
What: Clinical Trials 101 When: May 9, 2024 6pm ET Where: Zoom I AM ALS’ Clinical Trial Community team will be hosting a monthly webinar series to increase people’s understanding of clinical trials in general, as well as ongoing ALS clinical trials and trial finder tools. The first webinar will cover the basics of clinical trials. The following…
Expanded Access 101 - Presented by the Working Group on Compassionate Use & Preapproval Access (CUPA) Date & Time May 15, 2024 12:00 PM Description Our annual introductory webinar covering the basics of the expanded access (compassionate use) pathway of access to investigational medical products
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
National Institutes of Health (NIH) funded “ALL ALS” consortium is a multi-institutional effort that aims to organize the ALS clinical research landscape in the US. ALL ALS is operating in partnership with several stakeholders to operationalize the recommendations of the Accelerating Access to Critical Therapies for ALS Act (ACT for ALS) Public Private Partnership. ALL…
May 29, 2024 7:00 AM Eastern Time (US and Canada) This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected, what care and support can be followed, non-invasive equipment available, and what is a tracheostomy, how it works, and considerations. Presenter: Susan Brumby
About the program: People living with ALS must make many complex decisions regarding their future care needs, which can be stressful and overwhelming. In our upcoming ALS Learning Series, with Dr. Anne Hogden, she’ll discuss how she and other researchers have collaborated with the ALS community, their family members, and their ALS care teams to develop tools…
