Families with ALS
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have…
Free
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Education
Weekly HEALEY ALS Platform Trial Webinar
VirtualAs part of our weekly webinar series, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs). Please join…
Free
NEALS Webinar: The Science Behind ALS Treatments: Riluzole, Radicava, and Relyvrio
Virtual"ALS Treatments: Riluzole, Radicava, and Relyvrio" Presented by the NEALS Information and Community Education (NICE) Working Group Monday, March 18, 2024 at 4:30pm ET Moderated by Senda Ajroud-Driss, this webinar for both…
Free
2024 ALS Outlook
ZoomJoin the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, March 21st, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…
Free
ALS/MND Platform Trials Update
VirtualMarch 27, 2024 8:00 AM Eastern Time (US and Canada) This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, MAGNET and SMART. They will update…
Free
The Role of Multidisciplinary Care in ALS
VirtualThursday, March 28 - 12 - 1 PM CST About the Program: Join us for our March ALS Learning Series, where team members and people living with ALS will explore…
Free
ALS Town Hall: Light the Way – A New Approach to Genetic Testing
VirtualA new approach to genetic testing for patients and family members at risk of ALS Wednesday, April 3, 2024 | 3:00 - 4:00pm EDT Participate in our upcoming ALS Town…
Free
Navigating Advanced Directives
VirtualAbout the talk: Advanced directives are legal documents that provide instructions for medical care. When living with ALS, it is important to think ahead about what kind of care you may…
Free
ALS Town Hall: Discover Roon – Your Ultimate ALS Resource
VirtualDiscover Roon: Your Ultimate ALS Resource for Answers to All Your Questions: Wednesday, April 17, 2024 | 3:00 - 4:00pm EDT Join us on April 17, 2024 for an ALS…
Mental Health In ALS/MND
VirtualApril 24, 2024 9:00 AM Eastern Time (US and Canada) This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how…
Free
Constipation in People Living with ALS: Does Autonomic Dysfunction Play A Role?
VirtualJoin us for an insightful session with Dr. Ghazala Hayat, MD, FAAN, FANA, FAANEM, as we delve into the prevalence and challenges of constipation in people living with ALS. Dr.…
BLOWING UP THE PIPELINE: Stories from the frontlines of the ALS Revolution
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness…
Free
Working to End ALS, Hosted by the Congressional ALS Caucus
Virtual or In PersonHoping to live stream on Mike Quigley's YouTube Channel https://www.youtube.com/@RepMikeQuigley
NEALS Webinar: An Overview of The ALS Better Care Act
VirtualJoin Dr. Terry Heiman-Patterson, Dr. Sabrina Paganoni, and Dr. Kelly Gwathmey's discussion of the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that…
Free
Weekly HEALEY ALS Platform Trial Webinar – EAP
VirtualSpecial Topic: Expanded Access As part of our weekly webinar series, we will dedicate one Thursday each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs) Please…
Free
I AM ALS: Clinical Trials 101
VirtualWhat: Clinical Trials 101 When: May 9, 2024 6pm ET Where: Zoom I AM ALS’ Clinical Trial Community team will be hosting a monthly webinar series to increase people’s understanding of clinical trials…
Free
Expanded Access 101
VirtualExpanded Access 101 - Presented by the Working Group on Compassionate Use & Preapproval Access (CUPA) Date & Time May 15, 2024 12:00 PM Description Our annual introductory webinar covering…
Free
Brain Computer Interface (BCI) Trails in ALS
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness…
Free
Access for ALL in ALS (ALL ALS) Consortium
VirtualNational Institutes of Health (NIH) funded “ALL ALS” consortium is a multi-institutional effort that aims to organize the ALS clinical research landscape in the US. ALL ALS is operating in…
Free