Education
NEALS Conference 2023 Recap for the ALS Community
Dear MGH-ALS Community, Darlene Sawicki and Sarah Luppino, Nurse Practitioners at the MGH ALS Multidisciplinary Clinic, will share what they learned at the NEALS 2023 conference with the ALS community.…
Ethical Principles & Informed Consent in Research
VirtualTitle: Ethical Principles & Informed Consent in Research Date/Time: Thursday, October 26th, 2023 at noon CST Discover the crucial role of informed consent in research at our October ALS Learning…
Weekly HEALEY ALS Platform Trial Webinar
VirtualHeading into the new year, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, November 9th, at 5:00…
Weekly HEALEY ALS Platform Trial Webinar
VirtualSpecial Topic: Regimen G Drug Science Curious about the science behind Regimen G of the HEALEY ALS Platform Trial? Join us for our weekly webinar on Thursday, November 16th, at 5:00…
Technical Assistance Webinars: RFA-NS-24-029: Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded
This is a reminder of our upcoming webinars related to RFA-NS-24-029 "Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required)”. NIH program and review staff will provide an…
Weekly HEALEY ALS Platform Trial Webinar – Expanded Access
VirtualHeading into the new year, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, December 14th, at 5:00…
Seeing ALS from All Angles
Sunday, December 17, 2023 1:00-2:00 p.m. ET Doctor Goodson will discuss his pathway to medicine and the doctor's side of the doctor patient relationship. He will describe his 25 years…
Technical Assistance Webinars: RFA-NS-24-029: Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded
This is a reminder of our upcoming webinars related to RFA-NS-24-029 "Amyotrophic Lateral Sclerosis (ALS) Intermediate Patient Population Expanded Access (U01 Clinical Trial Required)”. NIH program and review staff will provide an…
Harnessing The Power of Citizen Research
ZoomDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness…
Weekly HEALEY ALS Platform Trial Webinar – EAP discussion with guest speakers from the NIH
VirtualAs part of our weekly webinar series, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday,…
Weekly HEALEY ALS Platform Trial Webinar – Pridopidine update with Prilenia Therapeutics
VirtualPridopidine update with Prilenia Therapeutics
Annual Global Clinical Trials Update
VirtualThis webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to…
ALS TDI Town Hall
VirtualALS Patient Fellows Share Insights from the ALS MND Symposium ALS Patient Fellows Share Insights from the ALS MND Symposium Thursday, January 25, 2024 | 3:00 - 4:00pm EDT Participate…
National ALS Registry: Learn How You Can Join the Fight Against ALS Confirmation
ZoomThe National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States…
Weekly HEALEY ALS Platform Trial Webinar – CNM-Au8 Update with Clene Nanomedicine
VirtualPlease join us on Thursday, January 25th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and…
Genetic ALS / FTD Research Education Series: Focus on C9orf72
VirtualAbout the event Around 140,000 or more healthy people in the United States have C9orf72 repeat expansions, a few thousand more with a current ALS or FTD diagnosis - what…
A conversation with a genetic counselor: Could the ALS in my family be genetic?
About the Presentation: Navigating ALS care can be complicated and filled with many complex decisions, including whether genetic testing is right for you. Join us for a discussion with genetic…