ALS Clinical Trial Pipeline Webinar
Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital) will review the ALS clinical trial pipeline and answers questions about the current state of clinical research.
Free
Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital) will review the ALS clinical trial pipeline and answers questions about the current state of clinical research.
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Jinsy Andrews from Columbia University. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance of patient…
Dissecting ALS Research articles, with Colin Franz, MD, PhD, Assistant Professor in Physical Medicine and Rehabilitation and Neurology, Shirley Ryan AbilityLabs and Northwestern University. Current treatments for Amyotrophic Lateral Sclerosis (ALS) are lacking, but more are the horizon. Naturally we look to new ALS research studies for hope and solutions, but the information in scientific…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Dr. Nathan Crone (Johns Hopkins University) discusses the rationale for using brain-computer interfaces to support communication in people with severe motor impairments and describes two clinical trials of implantable brain-computer interfaces at Johns Hopkins.
Biomarkers in ALS/MND July 8 2021, 7:00 - 8:00 AM EST (New York) via Zoom Webinar A biomarker, short for biological marker, is an objective and quantifiable measure of biological processes or states. Biomarkers can be used to deepen our understanding of a disease, or quantify its state and severity, and are critical in clinical trials in determining,…
Nutrition Optimization in Patients with ALS, with Brittany Hitson, MS, RD, LDN & Dominique Kosk, MPH, RD, LDN, CNSC About the program: The purpose of this webinar is to help you better understand how ALS impacts nutrition. Each person may experience their own unique set of challenges that may change over time when it comes…
Join Dr. Steven Zeiler, Dr. Terri Thompson and Ed Rapp on July 13th to hear more about the newly launched ALS Companion app and the Answer ALS data portal. Answer ALS is creating a hub of ALS knowledge and resources to help propel the research field forward. Find out how you can help.
ALS Town Hall: Exercise and ALS Guest Presenters: Dr. Jonathan Cooper-Knock, Laura Good, and Amanda Beaty Wednesday, July 28, 2021 | 4:00 - 5:30pm EDT In our upcoming Town Hall: Exercise and ALS, we will learn about and discuss two important aspects of the role of physical exercise in ALS, including: Recent findings that intense physical exercise…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Many rare diseases have an underlying genetic cause. Individuals and families living with a rare or undiagnosed disorder or those concerned about the risk of a rare disorder can benefit from meeting with a genetic counselor. Genetic counselors are healthcare professionals with advanced training in medical genetics and counseling who work to help families: Understand…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance of…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
About the Program: This webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms, provide helpful tips including tongue and respiratory exercises along with voice banking and communication aid options. Knowing what to expect as your symptoms change can help you make well-informed and timely…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
EverythingALS is excited for our next speaker on September 8th 4pm PT | 7pm ET! Dr. Michael Benatar from University of Miami will discuss Symptomatic & Pre-symptomatic Biomarkers for ALS Therapy Development. After the presentation, we open up to audience Q&A to answer all your questions, followed by an open forum where you can connect…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
EverythingALS is excited for our next speaker on September 22nd 4pm PT | 7pm ET! Dr. Richard Bedlack is currently a Professor of Neurology at Duke University, and Director of the Duke ALS Clinic. He will be discussing the findings from the Open Label Trial: Clenbuterol for ALS. After the presentation, we open up to…
Please join Dr. Merit Cudkowicz and Dr. Sabrina Paganoni for a conversation about recent updates on AMX0035 (sodium phenylbutyrate/taurursodiol) and to review details of the Phase 3 PHOENIX Study (Study A35-004). Register here.
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
This webinar will identify solutions for communication and use of smart phones, tablets, and computers as ALS can affect your speech and ability to use these devices. This course will focus on making communication as easy as possible throughout this difficult journey, using cutting-edge technology and collaboration with each person’s team including their family, caregivers, therapists,…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
EverythingALS is excited for our next speaker on October 6th 4pm PT | 7pm ET! Clive Svendsen, Ph.D., executive director of Cedars-Sinai’s Board of Governors Regenerative Medicine Institute, has a long-standing interest in ALS and he was the Sponsor of the first-ever clinical trial delivering stem cells and GDNF to patients that was recently completed…
The decision to have genetic testing for a familial ALS gene is important and may have implications for those interested in starting a family. This talk will review family planning options available to individuals to reduce the risk of passing on a genetic disorder. We'll review what is involved in each option as well as…