I AM ALS is pleased to host a forum for industry and advocates on Expanded Access featuring Alison Bateman-House, PhD, MPH, MA, Assistant Professor at NYU Grossman School of Medicine and co-chair of the Working Group on Compassionate Use and Preapproval Access (CUPA). The event will take place on Tuesday, May 18, at 4 pm…
Hear from Dr. Suma Babu about clinical trials actively recruiting at MGH and other sites throughout the country and meet the MGH Research Access Nurse, Judith Carey, who will talk to you about where to get started with research. Also, learn from Nadia Sethi about resources available to the community to find the right trial…
In our May webinar, Dr. Coleman will be discussing respiratory support in ALS including non-invasive and invasive ventilation. About the Presenter: John M. Coleman III, MD. Associate Professor of Medicine and Neurology, Northwestern Medicine. Thu, May 20, 2021 12:00 AM - 1:00 PM CDT Register Here
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
In the ALS Town Hall: A Research Discussion with ALS TDI's New CEO, our CEO and Chief Scientific Officer, Fernando Vieira M.D., will lead a research-focused conversation with the ALS community. Dr. Vieira will discuss ALS research, the current research at ALS TDI, and ALS TDI’s critical role in developing effective treatments for ALS. Any good discussion…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
At Major League Baseball parks throughout the US. Be there or be square.
Major League Baseball is officially honoring Lou Gehrig Day at ballparks across the country on June 2 and 3. To commemorate the occasion, please join us for a very special discussion on Wednesday, June 2 from 12:00 PM - 1:00 PM CDT with two longtime friends of the Les Turner ALS Foundation: Jonathan Eig, acclaimed…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital) will review the ALS clinical trial pipeline and answers questions about the current state of clinical research.
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Jinsy Andrews from Columbia University. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance of patient…
Dissecting ALS Research articles, with Colin Franz, MD, PhD, Assistant Professor in Physical Medicine and Rehabilitation and Neurology, Shirley Ryan AbilityLabs and Northwestern University. Current treatments for Amyotrophic Lateral Sclerosis (ALS) are lacking, but more are the horizon. Naturally we look to new ALS research studies for hope and solutions, but the information in scientific…
Please join us on Thursdays at 5:00pm EST for a webinar about the HEALEY ALS Platform Trial. Click here to register! If you have questions or comments in advance, please email them to healeyalsplatform@mgh.harvard.edu
Dr. Nathan Crone (Johns Hopkins University) discusses the rationale for using brain-computer interfaces to support communication in people with severe motor impairments and describes two clinical trials of implantable brain-computer interfaces at Johns Hopkins.
Biomarkers in ALS/MND July 8 2021, 7:00 - 8:00 AM EST (New York) via Zoom Webinar A biomarker, short for biological marker, is an objective and quantifiable measure of biological processes or states. Biomarkers can be used to deepen our understanding of a disease, or quantify its state and severity, and are critical in clinical trials in determining,…
Nutrition Optimization in Patients with ALS, with Brittany Hitson, MS, RD, LDN & Dominique Kosk, MPH, RD, LDN, CNSC About the program: The purpose of this webinar is to help you better understand how ALS impacts nutrition. Each person may experience their own unique set of challenges that may change over time when it comes…
Join Dr. Steven Zeiler, Dr. Terri Thompson and Ed Rapp on July 13th to hear more about the newly launched ALS Companion app and the Answer ALS data portal. Answer ALS is creating a hub of ALS knowledge and resources to help propel the research field forward. Find out how you can help.
ALS Town Hall: Exercise and ALS Guest Presenters: Dr. Jonathan Cooper-Knock, Laura Good, and Amanda Beaty Wednesday, July 28, 2021 | 4:00 - 5:30pm EDT In our upcoming Town Hall: Exercise and ALS, we will learn about and discuss two important aspects of the role of physical exercise in ALS, including: Recent findings that intense physical exercise…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Many rare diseases have an underlying genetic cause. Individuals and families living with a rare or undiagnosed disorder or those concerned about the risk of a rare disorder can benefit from meeting with a genetic counselor. Genetic counselors are healthcare professionals with advanced training in medical genetics and counseling who work to help families: Understand…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance of…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
About the Program: This webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms, provide helpful tips including tongue and respiratory exercises along with voice banking and communication aid options. Knowing what to expect as your symptoms change can help you make well-informed and timely…
Get the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here