Education
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
NORD – Genetic Counseling for Rare and Undiagnosed Conditions
VirtualMany rare diseases have an underlying genetic cause. Individuals and families living with a rare or undiagnosed disorder or those concerned about the risk of a rare disorder can benefit…
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
ALS Drug Development Webinar Series Part 5: Preclinical Development of Potential Therapies
Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from Duke ALS Clinic. This series will include talks on…
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
ALS Learning Series: Managing Speech and Swallowing Problems in ALS
VirtualAbout the Program: This webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms, provide helpful tips including tongue and…
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Symptomatic and Pre-Symptomatic Biomarkers for ALS Therapy Development
VirtualEverythingALS is excited for our next speaker on September 8th 4pm PT | 7pm ET! Dr. Michael Benatar from University of Miami will discuss Symptomatic & Pre-symptomatic Biomarkers for ALS…
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
Clenbuterol for ALS: Findings From an Open Label Trial
VirtualEverythingALS is excited for our next speaker on September 22nd 4pm PT | 7pm ET! Dr. Richard Bedlack is currently a Professor of Neurology at Duke University, and Director of…
An Update on AMX0035 and Design of the Phase 3 PHOENIX Study
VirtualPlease join Dr. Merit Cudkowicz and Dr. Sabrina Paganoni for a conversation about recent updates on AMX0035 (sodium phenylbutyrate/taurursodiol) and to review details of the Phase 3 PHOENIX Study (Study…
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology
VirtualThis webinar will identify solutions for communication and use of smart phones, tablets, and computers as ALS can affect your speech and ability to use these devices. This course will focus…
Weekly HEALEY ALS Platform Trial Webinar
VirtualGet the latest news and updates about the HEALEY ALS Platform Trial with this weekly webinar on Thursdays at 5:00pm ET. Register Here
A new CIRM funded clinical trial transplanting stem cells releasing GDNF into the motor cortex of patients with ALS
VirtualEverythingALS is excited for our next speaker on October 6th 4pm PT | 7pm ET! Clive Svendsen, Ph.D., executive director of Cedars-Sinai’s Board of Governors Regenerative Medicine Institute, has a…
ALS Learning Series: Family Planning and ALS
VirtualThe decision to have genetic testing for a familial ALS gene is important and may have implications for those interested in starting a family. This talk will review family planning…
An Intimate Talk with the Ellen McConnell Blakeman ALS Research Fellow
VirtualJoin A Long Swim on Monday, October 18, 2021, at 7:00 pm CST for an intimate talk with the recipient of the Ellen McConnell Blakeman ALS Research Fellowship at Northwestern…
11th Annual Les Turner Symposium on ALS
Save the date for the 11th Annual Les Turner Symposium on ALS on Monday, November 8, 2021. The Symposium features presentations from leading ALS clinicians and researchers, including members of…
ALS Learning Series: Hospice & Palliative Care for People with ALS
VirtualJoin this Hospice and Palliative Care webinar to learn how to talk with your loved ones about ALS end-of-life care, what to say, and most importantly, when to say it.…
Courage ALS, a Phase 3 Trial of Reldesemtiv in ALS
Please join us to learn about COURAGE-ALS, a global phase 3 trial of reldesemtiv currently enrolling participants.
ALS Learning Series: Empowering You to Take Control of Your ALS Care
VirtualDuring this webinar, you will learn how to use the new My ALS Decision Tool™. This groundbreaking decision tool is a web-based, interactive series of questions and considerations which can…
ALS Learning Series: Mobility Aids & Home Modification Tips to Improve Quality of Life in ALS
VirtualDuring this webinar, the presenters will be discussing symptoms of mobility weakness and how ALS affects mobility. You will learn about a variety of mobility aids to assist you in…
NEALS Webinar: Phase 2a trial of Oral LAM-002A capsules in C9ORF72 ALS
Please join us on February 24th for a webinar to learn about a new Phase 2a trial of Oral LAM-002A capsules for individuals with C9ORF72 positive ALS.
We Need to Do Better: Strategies to Identify and Validate EFFECTIVE ALS therapies and Accelerate the Translation
VirtualZoom Meeting: https://us02web.zoom.us/j/9696329782 Password: 0316 We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are…
Making Activities of Daily Life Easier in ALS
VirtualMaking Activities of Daily Life Easier in ALS - Thursday, March 17, 2022 from Noon to 1:00pm CT About the Program: This webinar will focus on how ALS may impact your…
The ATLAS Study: A Clinical Trial for Adults with a Confirmed Superoxide Dismutase 1 (SOD1) Mutation without Signs or Symptoms of Amyotrophic Lateral Sclerosis (ALS)
The purpose of this webinar is to provide an overview of the ATLAS study, the investigational drug, eligibility criteria, and what study participation involves. This webinar will also share resources…
HEALEY ALS Platform Trial Q&A Webinar
VirtualPlease join us on Thursday, March 17th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to the study team at the University…