Many rare diseases have an underlying genetic cause. Individuals and families living with a rare or undiagnosed disorder or those concerned about the risk of a rare disorder can benefit from meeting with a genetic counselor. Genetic counselors are healthcare professionals with advanced training in medical genetics and counseling who work to help families: Understand…
Join us for the fifth installment of the NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the science of trials, ethical considerations, the clinical trial site level overview, and the importance of…
About the Program: This webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms, provide helpful tips including tongue and respiratory exercises along with voice banking and communication aid options. Knowing what to expect as your symptoms change can help you make well-informed and timely…